Objective: To explore family caregivers’ views on the role of eHealth in formal care and in supporting physical activity and exercise for people with Parkinson’s disease (PD).

Background: The rapid expansion of digital health solutions presents new opportunities for people living with PD. Yet, because PD involves multifaceted motor and non‑motor symptoms, effective use of eHealth often requires substantial involvement from family caregivers. Although many studies have examined perspectives of individuals with PD, considerably less is known about how family caregivers view eHealth in everyday care and in relation to physical activity and exercise.

Method: A qualitative interview study was conducted with 15 caregivers from both rural and urban regions of Sweden (mean age 72 years; 12 women). An inductive qualitative content analysis was applied to the interview transcripts.

Results: Analysis generated three overarching themes. Bearing the Weight of Health and Home Responsibilities captured caregivers’ experiences of managing digital tools, balancing confidence with concerns about added strain, coping with emotional pressure, and encouraging their partner’s participation. Balancing Demands and Meaningful Moments described expectations that eHealth might streamline daily routines and improve flexibility, alongside fears of reduced social contact, increased isolation, and the need for PD‑adapted exercise solutions. Bridges or Barriers to Support reflected caregivers’ reliance on online information due to limited professional input, appreciation for accessible contact with PD nurses, and a desire for blended care models integrating digital and in‑person follow‑up.

Conclusion: Family caregivers recognized both advantages and challenges of eHealth in PD care. They valued its potential to ease daily responsibilities and offer flexible support but also highlighted risks related to increased workload, diminished face‑to‑face interaction, and the scarcity of professional guidance. Their experiences underscore the need for eHealth solutions that support, not replace, caregiver involvement and access to professional guidance.

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MDS Abstracts - https://www.mdsabstracts.org/abstract/family-caregivers-and-ehealth-in-parkinsons-disease-insights-from-a-qualitative-study/