Category: Parkinson's Disease (Other)
Objective: This study aims to explore the lived experiences of PD patients and their caregivers in Cebu Province, Philippines; identify psychosocial and healthcare-related challenges; assess unmet needs; and examine how Filipino cultural values influence disease perception and caregiving practices.
Background: Parkinson’s disease (PD) is a progressive neurodegenerative disorder characterized by both motor and non-motor symptoms. Although its global burden is rising, PD remains underrecognized in low- and middle-income countries like the Philippines, where access to diagnosis, treatment, and support systems is limited.
Method: A phenomenological qualitative design was employed. Data were gathered through structured and unstructured interviews and focus group discussions (FGDs) conducted during a Parkinson’s Awareness event in April 2025. A total of 43 patients (mean age: 75 years, mostly male) and 32 caregivers (mean age: 65 years, mostly female) participated. Thematic analysis was guided by the constant comparative method and a standardized codebook.
Results: Five major themes emerged: (1) Acceptance and emotional adjustment to diagnosis; (2) Navigating treatment and healthcare systems; (3) Daily and emotional challenges; (4) Shifting family dynamics and caregiving roles; and (5) Limited community and institutional support. Filipino cultural values (humility, shared identity, and fellowship) significantly shaped caregiving responses and help-seeking behaviors.
Conclusion: PD care in the Philippines is marked by psychological burden, caregiver strain, and systemic healthcare gaps. Culturally sensitive, multidisciplinary approaches are urgently needed,
including expanded caregiver support, mental health services, and improved access to specialized care.
Emotions, Challenges, and Unmet Needs
Major Themes and Subthemes Identified
References: [1] Fekonja Z, Irgolič N, Vrbnjak D. Family members’ experiences of everyday caregiving for a family member living with Parkinson’s disease: a qualitative thematic analysis study. BMC Nurs; 23. Epub ahead of print 6 February 2024. DOI: 10.1186/s12912-024-01767-6.
[2] Bhidayasiri R, Sringean J, Phumphid S, et al. The rise of Parkinson’s disease is a global challenge, but efforts to tackle this must begin at a national level: a protocol for national digital screening and “eat, move, sleep” lifestyle interventions to prevent or slow the rise of non-communicable diseases in Thailand. Front Neurol; 15. Epub ahead of print 13 May 2024. DOI: 10.3389/fneur.2024.1386608.
[3] Launch of WHO’s Parkinson disease technical brief, https://www.who.int/news/item/14-06-2022-launch-of-who-s-parkinson-disease-technical-brief (accessed 26 July 2025).
[4] Rosales RL, Camille E. Rosales M, Jane S.J. Robles D, et al. A Community-based study on the prevalence and predisposing factors of Parkinson’s disease in Barangay Mangilag Sur, Quezon Province, Philippines. Clin Park Relat Disord 2022; 7: 100169.
[5] Geerlings AD, Kapelle WM, Sederel CJ, et al. Caregiver burden in Parkinson’s disease: a mixed-methods study. BMC Med; 21. Epub ahead of print 10 July 2023. DOI: 10.1186/s12916-023-02933-4.
[6] Dominguez M. Filipino Americans’ Perspectives on Caregiving. Walden Diss Dr Stud, https://scholarworks.waldenu.edu/dissertations/3763 (2017).
[7] Jose CG, Lucy R, Parker AM, et al. Pakikisama: Filipino Patient Perspectives on Health Care Access and Utilization. J Am Board Fam Med 2024; 37: 242–250.
[8] Nimmons D, Armstrong M, Pigott J, et al. Exploring the experiences of people and family carers from under-represented groups in self-managing Parkinson’s disease and their use of digital health to do this. Digit Health 2022; 8: 205520762211022.
[9] Theed R, Eccles F, Simpson J. Experiences of caring for a family member with Parkinson’s disease: a meta-synthesis. Aging Ment Health 2017; 21: 1007–1016.
[10] Chen Y, Zhou W, Hou L, et al. The subjective experience of family caregivers of people living with Parkinson’s disease: a meta-ethnography of qualitative literature. Aging Clin Exp Res 2021; 34: 959–970.
[11] Seshadri S, Contento A, Sugiura K, et al. Parkinson’s Disease Carepartners’ Perceptions of the Challenges and Rewards of Caregiving. Am J Hosp Palliat Med 2024; 41: 1442–1450.
[12] Patton MQ, Patton MQ. Qualitative evaluation and research methods. 2nd ed. Newbury Park, Calif: Sage Publications, 1990.
[13] Glaser BG, Strauss AL. Discovery of Grounded Theory: Strategies for Qualitative Research. 1st edition. London: Routledge, 2000.
To cite this abstract in AMA style:
FM. Lawas, GS. Saranza, JH. Hernani. The Lived Experience of Parkinson’s Disease in the Philippines: Challenges, Cultural Constructs, and Caregiving Impacts [abstract]. Mov Disord. 2026; 41 (suppl 1). https://www.mdsabstracts.org/abstract/the-lived-experience-of-parkinsons-disease-in-the-philippines-challenges-cultural-constructs-and-caregiving-impacts/. Accessed October 1, 2026.« Back to 2026 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/the-lived-experience-of-parkinsons-disease-in-the-philippines-challenges-cultural-constructs-and-caregiving-impacts/