Category: Allied Healthcare Professionals
Objective: The objective of this research is to measure the burden and depression experienced by caregivers and the factors related to it among individuals diagnosed with Parkinson’s Disease (PD).
Background: Individuals diagnosed with PD frequently necessitate aid in adhering to medicine and performing daily activities, resulting in a significant strain on caregivers. The caregiver’s social support network can be strained and family dynamics can be disrupted by this stress.
Method: A cross-sectional survey was done among adults (aged 25 and above) with PD patients in families in selected rural areas, using data acquired from the records of the Odisha State Health Department. Caretakers were assessed using Patient Reported Outcome (PRO) measures, namely the European Quality of Life 5 Domains (EQ-5D) and the PD Assessment Questionnaire short-version (PDPAQ-SV). The study employed analysis of variance (ANOVA) to examine the relationships among PRO ratings, social support, and accessibility to healthcare facilities.
Results: Of the 437 individuals with PD patients in families, 69.1% successfully finished the survey, and data was accessible for 76.7% of patients. The presence of other family members had a significant impact on all PRO measures (p<.0001), with work-life situations (private, public, location, salary) exhibiting the most substantial decrease in scores. The multivariate analyses revealed significant associations (p<.05) between PRO measures and many factors, including family size, access to healthcare experts, job locations, number of working hours, PD patient’s age, comorbidities, and obesity.
Conclusion: There is a correlation between caretakers for people with Parkinson’s disease (PD) and a decline in their Health-Related Quality of Life (HRQoL) and overall health condition. The HRQoL of caretakers is greatly influenced by family support, work-life balance support, and the accessibility of healthcare.
To cite this abstract in AMA style:
S. Kuanar. An Investigation of Quality of Life for Caretakers of Parkinson’s Disease Patients in Indian Villages [abstract]. Mov Disord. 2024; 39 (suppl 1). https://www.mdsabstracts.org/abstract/an-investigation-of-quality-of-life-for-caretakers-of-parkinsons-disease-patients-in-indian-villages/. Accessed May 18, 2025.« Back to 2024 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/an-investigation-of-quality-of-life-for-caretakers-of-parkinsons-disease-patients-in-indian-villages/