Objective: To learn the quality of life of the dystonia patients with implanted DBS.

Background: Subject was diagnosed General dystonia, and undergone GPi DBS surgery in Tyumen Federal Center of Neurosurgery, Russia. Examined through 9 (2013-2021) years after surgery. The long follow-up period and geographic difference between his city Krasnodar and Tyumen (2835) km. made it impractical to perform consistent in-person evaluations every 3 month as we planned. Social media allowed doctors to contact patient and to achieve a high responder rate. Object of study was obtained for study participation, which involved the collection, storage, and analysis of clinical information relative to his DBS therapy.

Method: Anamnesis: started at age in 8 (2009), with local dystonia in right hand. No family history of dystonia. For 5 years symptoms get severe, at age of 12 he had generalizated dystonia. He was seeing different neurologist, took different medications, like Levodopa and Clonozepame, with no effect. In April 2013 at age of 13 was undergone GPi DBS surgery, in November 2021 has undergone IPG replacement.

Study subject were asked to complete via messengers a survey. To evaluate the long-term impact of DBS on BFMDRS at least once in year patient came to examination, in this moment our team did all the tests for BFMDRS dystonia, also checking and setting the DBS program.

Results: In 2021 patient is a university student, works at part time job and has a fiancé.

As we can see from Table 1. and Diagram 1. Condition of patient in ON DBS and OFF DBS is tremendous. Without DBS patient cannot even be in wheelchair. Socioeconomic outcome of the DBS surgery for this particular patient, his family and for state is huge.

Conclusion: We need more investments for clinical research in developing countries.

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MDS Abstracts - https://www.mdsabstracts.org/abstract/case-report-of-21-y-o-patient-with-9-years-of-dbs-in-dystonia-history-and-socioeconomic-outcome/