A qualitative evaluation of the health-related quality of life impact on informal caregivers to patients with neurogenic orthostatic hypotension
Objective: This study aimed to explore the impact of caring for an individual with neurogenic orthostatic hypotension (nOH) through qualitative interviews with informal caregivers and…Sex-specific associations between care partner burden and activities of daily living in Parkinson’s disease
Objective: To determine the activities of daily living (ADLs) associated with higher burden for female and male care partners in Parkinson’s disease (PD) Background: Care…The impact of gender identity and gender role orientation on health-related quality of life in people with Parkinson’s disease.
Objective: To assess the associations of gender identity and gender role orientation with health-related quality of life (HRQoL) among persons with Parkinson’s disease (PD). Background:…Care Partners in Parkinson’s: Who calls the Parkinson’s Foundation Helpline and why?
Objective: To describe the reasons for care partner contacts and to ascertain if there are gender differences in topic and time of contact, using ten…Parkinson’s Disease, Cognitive Function and Health Literacy: A Problem with Shared Decision Making
Objective: To explore the relationship between health literacy and cognitive impairment in PwPD Background: Parkinson’s disease (PD) is a complex neurodegenerative disorder with cognitive, psychiatric…Attitudes towards risk disclosure in prodromal Parkinson’s disease. Is there a cultural difference?
Objective: To investigate the attitudes of individuals with and without Parkinson’s disease (IwPD, IwoPD) relevant to risk disclosure for future PD in Turkish culture. Background:…Dance for Movement Disorders: Improving Health and Quality of Life
Objective: This poster will present four programs – the pioneering work of a dance for PD program, along with three programs that drew upon this…‘In It Together’: including carers to improve outcomes for people with Parkinson’s
Objective: Informal carers of people with Parkinson’s (PwP) can undertake multiple roles, including personal, emotional, financial, or household tasks [1] increasing as the condition progresses.…People living with Parkinson’s disease during the COVID-19 Pandemic: A cross-sectional survey of the Canadian experience
Objective: To explore the how the COVID-19 pandemic has changed healthcare experiences for people living with Parkinson’s disease (PwP) in Canada. Background: Parkinson’s disease (PD)…Complex Pediatric Tone and Movement Disorder Clinic: A Model for Multi-disciplinary Care in Qatar.
Objective: To describe a multidisciplinary service model designed for children with complex tone and movement disorders Background: Pediatric tone and movement disorders are diverse and…
Abstracts from the International Congress of Parkinson’s and Movement Disorders.