Effectiveness of Intensive Speech Treatment for Friedreich’s Ataxia
Objective: 1. Test feasibility of providing online intensive speech treatment to people with Friedreich’s Ataxia (FA)2. Compare benefits of two treatment targets (vocal loudness-LSVT LOUD;…Quantitative evaluation of speech characteristics in Assessment of Motor Speech for Dysarthria (AMSD) using acoustic analysis
Objective: This study aims to extract acoustic features from speech data obtained from patients undergoing the Assessment of Motor Speech for Dysarthria (AMSD), a clinical…“Parkinson Positivos”: A Collaborative Effort to Educate and Empower the Spanish-speaking community.
Objective: To create a culturally sensitive educational resource that (1) centers the voices of the Spanish-speaking community, (2) dispels misconceptions and breaks down barriers to…Diagnosis of GLUT1 Deficiency Syndrome in Adulthood
Objective: To present a case of GLUT1 deficiency syndrome diagnosed in adulthood emphasizing the need to keep this diagnosis in differential for adult patients with…Medication Administration Burden in Lewy Body Dementia Caregivers
Objective: To evaluate medication administration burden among Lewy Body Dementia (LBD) family caregivers and associations with caregiver and care recipient characteristics. Background: Family caregivers of…Caregiver Contribution to self-care in people with Parkison’s Disease: a meta-synthesis
Objective: The aim of the meta-synthesis is to explore the literature to understand the role of caregiver contribution to the self-care in people with Parkinson’s…Sleep Quality among Lewy Body Dementia Family Caregivers
Objective: To explore the relationship between caregiver sleep quality and caregiver and care recipient characteristics in Lewy Body Dementia (LBD). Background: LBD family caregivers have…International Mentorship in PPMI Clinical Translation (IMPaCT): Engagement Initiatives for Clinical Participants in the United States (US)
Objective: Describe cohort engagement strategies conducted by PPMI IMPaCT Program among US participants. Background: Retention in longitudinal studies is vital for study for data integrity/analysis.1…The Severity and Burden of Movement Disorder Symptomology in Patients with Cerebrotendinous Xanthomatosis: A US-based Survey
Objective: To provide information about the presentation, burden, and severity of movement disorder (MD) symptoms in cerebrotendinous xanthomatosis (CTX) from the patient perspective. Background: CTX…Potential Disease-Modifying Effects in Mild Parkinson’s Disease following High Intensity Aerobic Exercise: a Case Report
Objective: To describe the effects of high intensity aerobic exercise in an individual with mild Parkinson’s disease (PD). Background: Emerging evidence suggests high intensity aerobic…
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