Assessing Barriers to Advance Care Planning in Parkinson’s Disease Within a Cuban-American Population
Objective: Determine attitudes toward advance care planning among Cuban-American people with Parkinson’s disease (PWP). Background: Advance care planning (ACP) is a process that allows individuals…Unmet Motor and Nonmotor Needs of People with Parkinson’s in the Final Year of Life
Objective: To assess main issues People with Parkinson’s (PD, PwP) wished to discuss at clinical consultations with movement disorders specialists during the final year of…Participant-reported personal utility of genetic testing for Parkinson’s disease and interest in clinical trial participation
Objective: To investigate whether participants in the PD GENEration study (NCT04994015) perceived personal benefit from receiving genetic testing for Parkinson’s disease (PD), whether being tested…The AIMS Clinic Model: A Retrospective Analysis of Interdisciplinary Neuropalliative Care for People with Advanced Parkinsonism
Objective: To describe and evaluate the Advanced Interdisciplinary Movement Disorders Supportive Care (AIMS) Clinic, a novel interdisciplinary clinic for patients with advanced movement disorders. Background:…Benefits of Exercise on Mobility, Balance, and Cognition in Community-Dwelling Older Adults: An On-Land vs. In-Water Comparison Study
Objective: We conducted a three-arm trial (water exercise group × land exercise group × no exercise group) to assess the effects of a 4-month exercise…Once-Daily Suvecaltamide Pharmacokinetics, Safety, & Tolerability–Phase 1, Randomized, Double-Blind, Multiple Ascending Dose Study
Objective: Evaluate the pharmacokinetics (PK), safety, and tolerability of a once-daily (QD) suvecaltamide (JZP385) formulation and its major active metabolites (JZZ05000034=M01, JZZ05000035=M02) in a Phase…Sympathetic Nervous System Overactivity in the Pre-Motor Stage of Parkinson’s Disease: Therapeutic Implications
Objective: To investigate sympathetic nervous system (SNS) activity in idiopathic REM behavior disorder (iRBD) subjects at risk for Parkinson's disease (PD), and the effect of…Spectrum of Movement disorders, Imaging findings in SSPE and response to therapy – A prospective cohort study
Objective: We present the clinical profile, imaging, treatment trends and outcomes of a cohort SSPE patients who presented to our Institute with movement disorders. Background:…SAGE-324/BIIB124, an investigational GABAA receptor PAM, for treatment of essential tremor
Objective: KINETIC2 is a multicenter, randomized, placebo-controlled, dose-response Ph2b study evaluating SAGE-324/BIIB124 for treatment of essential tremor (ET). Background: ET is a common movement disorder1,2…Gathering Prodromal Participant Perspective on Receiving Personal Research Information
Objective: To understand perceptions and expectations of people with prodromal Parkinson’s disease (PD) around receiving personal research information. Background: There is limited information on the…
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