2022 International Congress » Quality Of Life/Caregiver Burden in Movement Disorders

‘Top of the POPPS’ – how we set up an online support group for Partners of People with Parkinson’s.

E. Edwards, S. Austin, J. Friend (Plymouth, United Kingdom)

A qualitative study exploring the treatment burden and capacity of people with Parkinson’s and their caregivers

QY. Tan, H. Roberts, S. Fraser, K. Ibrahim (Southampton, United Kingdom)

Caregiver burden and quality of life in late stage Parkinson’s disease

K. Rosqvist, A. Schrag, P. Odin (Lund, Sweden)

Caregiver’s burden in Parkinson’s disease: A mixed methods study

AD. van Halteren, WM. Kapelle, CJ. Sederel, MJ. Meinders, M. Munneke, BRB. Bloem, SKL. Darweesh (Nijmegen, Netherlands)

CAREGIVERS BURDEN IN CARING FOR PERSONS WITH PARKINSON’S DISEASE: A SURVEY FROM A TEACHING HOSPITAL IN GHANA

M. Agoriwo, D. Markwei, E. Womorde (Ho, Ghana)

Caregiving patients with Parkinson disease treated with deep brain stimulation: a systematic review and meta-synthesis of qualitative research

V. Fioravanti, F. Cavallieri, F. Sireci, M. Parmeggiani, C. Pedroni, F. Mardones, M. Bassi, E. Moro, L. Ghirotto, F. Valzania (Reggio Emilia, Italy)

Challenges and Opportunities People with Parkinson’s Disease Experienced Pre and Post-Covid-19 Vaccination

L. Currens, S. Carbone, J. Quast, W. Deeb (Worcester, USA)

Childhood Trauma and Parkinson’s Disease: Associations of Adverse Childhood Experiences, Disease Severity and Quality of Life

I. Subramanian, B. Mcdaniels, J. Farahnik, L. Mischley (Los Angeles, USA)

Development of a quality-of-life (QoL) questionnaire for hereditary spastic paraplegia (HSP) patients and caregivers.

J. Malina, B. Schröder, E. Hüßler, T. Kühl, S. Klebe (Essen, Germany)

Discrimination in Healthcare for Parkinsonism Across Sexual and Gender Minority Groups

E. Bayram, K. Wyman-Chick, L. Damron, I. Litvan (La Jolla, USA)

Disease knowledge in males and females with Parkinson’s Disease and Related Disorders

C. Selvadurai, E. Cournean, D. Costello, N. Prakash, B. Rodrigues (Farmington, USA)

Drivers of burden over time in caregivers of patients with Parkinson’s disease and related disorders: Findings from a community-based clinical trial of outpatient palliative care

A. Glickman, Z. Macchi, S. Sillau, M. Katz, S. Pantilat, B. Kluger (Aurora, USA)

Factors associated with progression of Parkinson’s disease and deterioration in quality of life: Results of J-FIRST, a 1-year observational study

K. Kashihara, S. Chiu, Y. Tsuboi, N. Hattori, M. Nomoto, H. Watanabe, T. Maeda, H. Saiki, Y. Shimo, T. Yamaguchi (Okayama, Japan)

Feasibility of in-person and remote delivery of Alexander technique course for care partners of people with neurodegenerative disease

M. Gross, R. Cohen, J. Bellingham, P. Brisset, C. Condie, S. Lazaro, B. Mello, A. Abdelrahman, J. Becker, S. Smith, T. Moote, W. Trusty (Candler, USA)

Frequency of depression and predictors of mood change among caregivers of Parkinson’s disease patients

C. Iñiguez Alvarado, D. Santos García, T. Deus Fonticoba, C. Cores, M. Feal Painceiras, E. Suarez Castro, C. Martinez Miró, S. Jesús, M. Aguilar, P. Pastor, L. Planellas, M. Cosgaya, J. García Caldente, N. Caballol, I. Legarda, J. Hernández Vara, I. Cabo, L. López Manzanares, I. González Aramburu, M. ávila Rivera, V. Gómez Mayordomo, V. Nogueira, V. Puente, J. García-Soto, C. Borrué, B. Solano Vila, M. álvarez Sauco, L. Vela, S. Escalante, E. Cubo, F. Carrillo Padilla, J. Martínez Castrillo, P. Sánchez Alonso, M. Alonso Losada, N. López Ariztegui, I. Gastón, J. Kulisevsky, M. Blázquez Estrada, M. Seijo, J. Rúiz Martínez, C. Valero, M. Kurtis, O. de Fábregues, J. González Ardura, R. Alonso Redondo, C. Ordás, L. López Díaz, D. Mcafee, P. Martinez-Martin, P. Mir (A Coruña, Spain)

Impact of COVID-19 in Parkinson disease: preliminary analysis from a survey performed in a Peruvian PD cohort.

E. Sarapura-Castro, D. Rivera-Asencios, M. Illanes-Manrique, A. Rivera-Valdivia, M. Inca-Martinez, K. Mejia-Rojas, J. Rios-Pinto, A. Medina-Colque, I. Cornejo-Herrera, E. Ochoa-Valle, C. Cosentino, I. Mata, M. Cornejo-Olivas (Lima, Peru)

Impact of two different rechargeable pulse generators on parkinsonian patients with deep brain stimulation

C. Bogaert, C. Der Linden (Gent, Belgium)

Learning to PERSEVERE: Efficacy and Feasibility of Peer Mentor Support and Caregiver Education in Lewy Body Dementia

J. Fleisher, F. Akram, S. Hess, M. Levin, D. Dodson, G. Stebbins, M. Tosin, B. Ouyang, J. Chodosh (Chicago, USA)

Longitudinal assessment of quality of life in early Parkinson’s disease: 5-year follow up study

I. Stankovic, T. Pekmezovic, V. Markovic, N. Dragasevic, I. Petrovic, M. Svetel, V. Kostic (Belgrade, Serbia)

Longitudinal predictors of quality of life in Parkinson’s disease: analysis of NILS cohort data at four years follow up

C. Rodriguez-Blazquez, MJ. Forjaz, A. Rizos, P. Martinez-Martin, KR. Chaudhuri (Madrid, Spain)

Parkinson’s disease caregiver burden in rural India

S. Desai, D. Desai, I. Prashnani (Anand, India)

Predictors of the change in burden and strain among caregivers of Parkinson’s disease patients

C. Cores Bartolomé, D. Santos García, T. Fonticoba, M. Feal Painceiras, E. Suarez Castro, C. Martinez Miro, S. Jesus Maestre, M. Aguilar, P. Pastor, L. Planellas, M. Cosgaya, J. Garcia Caldentey, N. Caballol, I. Legarda, J. Hernandez Vara, I. Cabo, L. Lopez Manzanares, I. Gonzalez Aramburu, MA. Avila Rivera, V. Gomez Mayordomo, V. Nogueira, V. Puente, J. Garcia-Soto, C. Borrue, B. Solano Vila, M. Alvarez Sauco, L. Vela, S. Escalante, E. Cubo, F. Carrillo Padilla, JC. Martinez Castrillo, P. Sanchez Alonso, MG. Alonso Losada, MI. Morales Casado, I. Gaston, J. Kulisevsky, M. Blazquez Estrada, M. Seijo, J. Ruiz Martinez, C. Valero, M. Kurtis, O. de Fabregues, J. Gonzalez Ardura, R. Alonso Redondo, C. Ordas, LM. Lopez Diaz, D. Mcafee, P. Martinez Martin, P. Mir (A CORUÑA, Spain)

Studies on stigma in Parkinson’s disease in the world. A literature review

S. Kibrit, AV. Karacan, G. Kayis, R. Yilmaz, MC. Akbostancı (Ankara, Turkey)

Test-Retest Reliability of the PDQ-Carer

D. Morley, S. Dummett, D. Churchman, L. Kelly, C. Jenkinson (Oxford, United Kingdom)

The barriers and facilitators to satisfaction with botulinum neurotoxin treatment in people with cervical dystonia: a systematic review.

M. Boyce, A. Mccambridge, L. Bradnam, C. Canning, A. Verhagen (Ultimo, Australia)

WHODAS 2.0 to access functional disabilities of Wilson disease’s patients

P. Ribeiro, E. Silva, F. Nery, H. Miranda, I. Pedroto, J. Ferreira, J. Gandara, L. Maia, P. Fernandes, S. Ferreira, M. Magalhães (Matosinhos, Portugal)