Caregiving people with Parkinson’s disease (PPD)
Objective: To show results form a study on caregiving PPD from a relational perspective. Background: Caregiving people with chronic neurological diseases like PPD can lead…Translation and validation of two Parkinson’s disease specific burden questionnaires from German into French.
Objective: The study purpose was to translate the questionnaires and to evaluate their internal consistency and temporal stability in a French study population, composed of…Improving Diagnosis and Treatment of Anxiety in Parkinson’s Disease: IDATA-PD Study Update
Objective: 1. To develop an inventory to assess Parkinson’s disease (PD) specific anxiety for person centred psychotherapy interventions. 2. To develop manualised cognitive behaviour therapy…Measure of Social Relation in Huntington’s Disease: The Relationship Self-Questionnaire (RSQ)
Objective: Development and validation of the Relationship Self-Questionnaire (RSQ), specific to Huntington’s disease (HD), which aims tomeasurepatients self-perceived quality of their relationships (RS). Background: In…Effects of Rasagiline on Parkinson’s Disease Questionnaire (PDQ-39) Emotional Well-being Domain in Patients with Parkinson’s Disease (PD): A Post-Hoc Analysis of Clinical Trials in Japan
Objective: To evaluate the direct and indirect effects of rasagiline on emotional well-being domain of the PDQ-39 in patients with PD by a post-hoc analysis…MDS Translation Program for MDS-UPDRS, UDysRS, and MDS-NMS
Objective: To summarize the status of the ongoing MDS-sponsored translation programs for non-English versions of the MDS-UPDRS, UDysRS, and MDS-NMS. Background: The MDS-UPDRS, UDysRS, and…Passive monitored daily motor behavior significantly relates to quality of life in early Parkinson’s disease
Objective: To investigate whether passively acquired measures of gait and hand gestures are associated with health-related quality of life (HrQoL; PDQ-39) and health-state (EQ-5D-5L) in…A Systematic Review of the Psychometric Properties of Psychosis Rating Scales in Neurodegenerative Conditions
Objective: To provide an overview of psychosis rating scales validated in specific neurodegenerative disease populations and compare psychometric characteristics of the validated psychosis scales. Background:…The Progressive Supranuclear Palsy Clinical Deficits Scale
Objective: To develop a scale to monitor clinical deficits in patients with Progressive Supranuclear Palsy across its broad phenotypes. Background: There is currently no undisputed,…Toward the digitization of the International Parkinson and Movement Disorder Society rating scales
Objective: Create recommendations for the electronic use of rating scales (e-scaled) owned or managed by the International Parkinson and Movement Disorder Society (MDS). Background: Medicine…
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