Functional Rating Scale 2.0 (FuRST2.0), a patient reported outcome measure for Huntington’s disease: The importance of the patient voice in scale development
Objective: Use focus groups, a Delphi panel, and multiple iterations of cognitive pretesting to develop a patient-reported outcome (PRO) measure of function in Huntington’s disease…Effect of perception of vertical position on forward flexion posture in patients with Parkinson’s disease: A multicenter, observational study (interim report)
Objective: This study investigated the effects of subjective vertical position, which a PD patient subjectively perceives as the vertical position, in exacerbating forward flexion posture…Montreal Cognitive Assessment cutoff point for cognitive impairment in Mexican subjects with PD: A neuropsychological approach
Objective: To determine an optimal cutoff point of the MoCA for cognitive impairment detection in Mexican persons with PD. Background: Cognitive impairment (CI) is frequent…Prognostic Modeling of Parkinson’s Disease Progression Using Early Longitudinal Patterns of Change
Objective: To develop a prognostic model using multiple longitudinal measures to predict temporal clinical progression in early PD. Background: Predicting time to Parkinson’s disease (PD)…Development of the Parkinson’s Disease Medication Adherence Scale (PD-MAS)
Objective: To implement the first 3 phases of the scale development process that will create the PD-MAS. Background: Drug therapy is a central strategy in…Building a Global Parkinson’s Genetics Program (GP2): Clinical Cohorts Integration Working Group
Objective: To recruit Parkinson's Disease (PD) cohorts across the world for the global Parkinson's Genetics Program (GP2, http://gp2.org/), harmonise clinical data across cohorts for joint…Fragile X-Associated Tremor Ataxia Syndrome Rating Scale (FXTAS-RS): development process using the Delphi method
Objective: To develop a revised and improved version of the FXTAS-RS. Background: Accurate measurement of FXTAS motor symptoms is vital to provide valid and reliable…Predictors of Clinically Significant Quality of Life Impairment in Parkinson´s Disease. Results from the COPPADIS Cohort at 2 Years Follow-up.
Objective: The aim of the present study was to identify predictors of clinically significant quality of life (QoL) impairment in Parkinson´s disease (PD) patients from…The comparisons between UPDRS and MDS-UPDRS in evaluating motor dysfunctions after subthalamic nucleus deep brain stimulation
Objective: We aimed to examine whether MDS-UPDRS are able to detect longitudinal changes in motor functions after STN-DBS in comparison to UPDRS. Background: Although MDS-UPDRS…Using smartphone data to infer social behaviour in Parkinson’s: proof of principle and the impact of COVID19
Objective: To investigate the potential of using smartphone data to infer changes in social behaviour in people with Parkinson's and how this has been impacted…
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