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Effects of multi-professional education program for management of Parkinson’s disease alterations on quality of life of people who are living with disease: a randomized clinical trial

C. Dias, A. Costa, E. Okamoto, A. Sartori, C. Silva, M. Piemonte (São Paulo, Brazil)

Meeting: 2019 International Congress

Abstract Number: 2100

Keywords: Interventions

Session Information

Date: Wednesday, September 25, 2019

Session Title: Non-Pharmacological Interventions

Session Time: 1:15pm-2:45pm

Location: Les Muses Terrace, Level 3

Objective: To compare the efficacy of a multi-professional education program for management of PD offered by in person group session and by internet on quality of life in people with PD.

Background: Parkinson’s disease (PD) is a complex chronic disease that causes several motor and non-motor dysfunctions. The World Health Organization advocates that for health care in chronic diseases, care should be person-centered. To participate consciously  in your treatment, it is essential that the individual has knowledge about the disease. Aiming to offer multi-professional education to people with PD,  AMPARO Network was created. There is a lack in the studies that had compared the efficiency distance education with in-person programs.

Method: A randomized, controlled, and blinded clinical trial was conducted with 50 people with PD. The participants  were randomly divided in 3 groups:face-to-face group (PG),group at distance (DG) that receives the lectures by email or app and control group (CG). The intervention consisted of the delivery of 10 lectures on interprofessional PD management. The quality of life assessment (PDQ 39) was adopted as the primary outcome and was evaluated before intervention (BI) and after 12 months (AI). A survey to evaluate the knowledge about the lecture’s topic and to investigate the availability to behaviour changes before (BL), immediately (AL) and 30 days (30dAL) after each lecture were applied only for PG and DG and adopted as secondary measures. The results were analyzed by ANOVA  considering as factor 3 groups (PGXDGXCG) and assessment points (BIXAI) for the primary measure and 2 groups (PGXDG) and assessment points (BPXAPX30dAL) for secondary measures.

Results: The ANOVA showed a significative interaction among groups and assessment points for PDQ 39 results. The post hoc test revealed a significative increase in scores only for PG and DG. Additionally, the ANOVA showed a significant effect of assessment points only, regardless of group, for the level of knowledge survey. Finally, for the Behavior change survey was not find any significant effects.

Conclusion: The education program  was able to improve the quality of life of people living with PD regardless of delivery way. This evidence confirms that education is a primary pillar to improve management of chronic disease.

References: INSTITUTE OF MEDICINE (USA) COMMITTEE ON QUALITY OF HEALTH CARE IN AMERICA. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington, Washington, DC: National Academy, 2001. REDE AMPARO. Disponível em:

To cite this abstract in AMA style:

C. Dias, A. Costa, E. Okamoto, A. Sartori, C. Silva, M. Piemonte. Effects of multi-professional education program for management of Parkinson’s disease alterations on quality of life of people who are living with disease: a randomized clinical trial [abstract]. Mov Disord. 2019; 34 (suppl 2). https://www.mdsabstracts.org/abstract/effects-of-multi-professional-education-program-for-management-of-parkinsons-disease-alterations-on-quality-of-life-of-people-who-are-living-with-disease-a-randomized-clinical-trial/. Accessed May 20, 2025.
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