Session Information
Date: Sunday, October 7, 2018
Session Title: Parkinsonism, MSA, PSP (Secondary and Parkinsonism-Plus)
Session Time: 1:45pm-3:15pm
Location: Hall 3FG
Objective: To compare referral and diagnostic time intervals from index symptom to death in PSP/CBD and age-sex matched PD.
Background: Misdiagnosis and delayed diagnosis are common in PSP and CBD. To inform approaches to reduce diagnostic delay it is essential to systematically evaluate patient pathways to diagnosis.
Methods: Cases with a final diagnosis of PSP, CBD, and age-sex matched PD were identified from the Parkinsonism Incidence in North-East Scotland (PINE) study, an incident community based cohort. Using general practitioner, hospital and research records, referral and diagnostic time intervals from index symptom onset to death were recorded.
Results: The referral and diagnostic time intervals from index symptom to death in 28 PSP/2 CBD cases (77.9 [9.1 years], 50% male) and 30 age-sex matched PD cases (77.6 [8.5 years], 50% male) are shown in Table 1.
Conclusions: While the time interval from symptom onset to death was similar in PSP/CBD and age-sex matched PD, referral and diagnostic time intervals were significantly longer in PSP/CBD over the course of the diagnostic pathway. Identifying factors that both improve the timing and destination of referral decision making, and the accuracy and timeliness of diagnosis is necessary.
To cite this abstract in AMA style:
D. Swallow, C. Counsell. Referral and diagnostic time intervals from symptom onset to death in progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and Parkinson’s disease (PD) [abstract]. Mov Disord. 2018; 33 (suppl 2). https://www.mdsabstracts.org/abstract/referral-and-diagnostic-time-intervals-from-symptom-onset-to-death-in-progressive-supranuclear-palsy-psp-corticobasal-degeneration-cbd-and-parkinsons-disease-pd/. Accessed October 5, 2024.« Back to 2018 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/referral-and-diagnostic-time-intervals-from-symptom-onset-to-death-in-progressive-supranuclear-palsy-psp-corticobasal-degeneration-cbd-and-parkinsons-disease-pd/