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Using tablet devices to educate patients about dystonia and botulinum toxin for movement disorders

S. Bobker, A. Hanineva, P. Popa, H. Ellsworth, X. Wu, I. Diaz, N. Hellmers, C. Henchcliffe, H. Sarva (New York, NY, USA)

Meeting: 2018 International Congress

Abstract Number: 98

Keywords: Botulinum toxin: Clinical applications: dystonia, Dystonia: Clinical features

Session Information

Date: Saturday, October 6, 2018

Session Title: Education in Movement Disorders

Session Time: 1:45pm-3:15pm

Location: Hall 3FG

Objective: To assess the efficacy of tablet-based learning modules for patient education in an outpatient movement disorders center.

Background: Educational materials improve patient understanding, and innovative technology may enhance such materials to improve patient comprehension of their disorder and treatment.1 Our pilot study of tablet-based interventions demonstrated the feasibility of a digital learning module for patients about Parkinson’s disease medication.2 We have expanded this study with modules about dystonia and botulinum toxin (BT).

Methods: All subjects (n=23) were recruited from the Parkinson’s Disease and Movement Disorder Institute at Weill Cornell Medicine. Subjects completed a tablet-based learning module comprised of a pre-test, a topic presentation, and a post-test. The post-test was repeated at three to six months later depending on patients’ appointments and schedules. Module A (n=14) was topic-specific to educate dystonia patients about their disorder, and Module B (n=14) was topic-specific to educate botulinum toxin (BT) patients about their treatment. A subset of subjects (n=5) received BT for dystonia, and therefore completed both modules. Subjects were evaluated for cognitive impairment to assess any correlation between cognitive status and retention of information.

Results: Subjects using Module A improved in post-test performance on the day of the topic presentation (p=0.002) and in follow-up (p=0.003). Subjects using Module B did not show statistically significant change, however the youngest (30-39 y, n=3) and oldest (70-79 y, n=2) subjects performed best. Given varying subject age, cognitive impairment was considered as a potential effect modifier. Among those with normal cognition (baseline MoCA score >=24), only Module A showed significance on the day of the topic presentation (p=0.002) and in follow-up (p=0.005).

Conclusions: Tablet-based learning modules can improve patient comprehension of their condition both post-intervention and in long-term follow-up. Despite the small sample size, preliminary data suggest this method is easy to use as adjunctive educational material for all age groups. Cognition may play a role but cannot be determined by the small sample size. Further studies are needed to assess a tablet-based approach in larger, more homogenous cohorts.

References: 1. Dinkelbach L, Moller B, Witt K, Schnitzler A, and Sudmeyer M. How to improve patient education on deep brain stimulation in Parkinson’s disease: the CARE Monitor study. BMC Neurology. 2017; 17: 36. 2. Hellmers N, Hanineva A, Stribling J, Carter, J, and Henchcliffe C. Patient-centered educational intervention using hand-held electronic devices. Movement Disorders. 2016; 31; S1-S697.

To cite this abstract in AMA style:

S. Bobker, A. Hanineva, P. Popa, H. Ellsworth, X. Wu, I. Diaz, N. Hellmers, C. Henchcliffe, H. Sarva. Using tablet devices to educate patients about dystonia and botulinum toxin for movement disorders [abstract]. Mov Disord. 2018; 33 (suppl 2). https://www.mdsabstracts.org/abstract/using-tablet-devices-to-educate-patients-about-dystonia-and-botulinum-toxin-for-movement-disorders/. Accessed June 14, 2025.
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