Objective: To analyse the psychometric properties of the English version of the Living with long term conditions (LwLTCs) scale in people living with Parkinson’s disease (PD).

Background: The English version of the LwLTCs scale has been developed to fill an important gap related to person-centred tools to evaluate living with PD among English-speaking population. This is the first validation study showing the psychometric properties of the LwLTCs-PD scale.

Method: Validation study, with an observational and cross-sectional design was conducted. The sample was composed of individuals living with PD from non-NHS services in the community. Psychometric properties, including feasibility and acceptability, internal consistency, reproducibility, and construct, internal and known-groups validity were tested.

Results: A total sample of 241 people living with PD were included. Ordinal alpha was 0.89 for the total scale. The intraclass correlation coefficient for the total scale was 0.88. The LwLTCs-PD scale is strongly correlated with scales measuring satisfaction with life (r_s=0.67), quality of life (r_s=0.54), and moderately correlated with social support (r_s=0.45). Statistically significant difference just for therapy and co-morbidity, yet no for gender, employment situation, or lifestyle changes.

Conclusion: The psychometric analysis results showed that the English version of the LwLTCs-PD scale presents adequate indicators of validity and reliability. However, future studies are recommended to prove the repeatability of the total scale and particularly, domains 3-Self-management, and 4-Integration, as well as internal consistency.

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MDS Abstracts - https://www.mdsabstracts.org/abstract/living-with-parkinsons-disease-scale-first-validation-study-among-english-speaking-population/