Development of a Clinical Outcomes Assessment (COA) in Pantothenate-Kinase Associated Neurodegeneration (PKAN): Item Generation and Clinimetric Properties
Objective: To develop a clinical outcome assessment (COA) scale that measures key aspects of functioning and daily living in patients with pantothenate kinase-associated neurodegeneration (PKAN)…The management of Parkinson’s disease in the Middle East countries: the MDS-middle east task force survey
Objective: The movement disorders society task force for the Middle East (MDS-Task Force for the Middle East) conducted a survey with an aim of characterizing…Evaluating the Experience of Diagnosis in Parkinson’s Disease
Objective: To evaluate a newly-designed diagnosis patient pathway for Parkinson’s disease, in terms of quality measures and patient satisfaction. Background: Receiving a diagnosis of Parkinson’s…Developing a guide to facilitate involving people with Parkinson’s and their carers in service improvement
Objective: To develop an easy-to-use guide for service development project leads and patients/carers to facilitate the involvement of the latter in the development and implementation…End of Life Care in Parkinson’s Disease
Objective: We aim to identify the current practice at the Royal Devon & Exeter NHS trust of managing Patients with PD at the end of…Polyneuropathy in patients with Parkinson’s disease from southern Spain treatment with levodopa/carbidopa intestinal gel infusión
Objective: This study main objective is to prospectively report the 10-year incidence of polineuropathy in Parkinson´s disease patients from southern Spain treated with LCIG. Background: Patients with…NS-PARK/FCRIN network, the French Clinical Research Network for Parkinson’s disease and Movement Disorders
Objective: The objective of NS-PARK/FCRIN network (http://www.parkinson.network/) is to facilitate and stimulate clinical academic and industrial research in France in the field of Parkinson's disease…Prevalence of Babinski-2 sign in Hemifacial Spasm Patients
Objective: To assess the frequency of Babinski-2 sign among patients with hemifacial spasm (HFS). Background: The Babinski-2 sign (“the other” Babinski sign, “brow-lift sign”), is…Effect of object size and obstacle avoidance on of Reach-to-Grasp Actions in Individuals with Parkinson’s disease
Objective: To investigate the effect of object size and obstacle on reach-to-grasp (RTG) actions in individuals Parkinson's disease (PD). Background: Previous studies reported impairments of…Death in patients with Parkinson’s disease – an observational study
Objective: We aimed to analyse the major cause and contributory reasons for death in patients with Parkinson’s disease (PD) who were known to our PD…