Date: Sunday, October 7, 2018
Session Title: Quality Of Life/Caregiver Burden in Movement Disorders
Session Time: 1:45pm-3:15pm
Location: Hall 3FG
Objective: As in any developing countries state of West Bengal in India has a huge burden of Parkinson patients coming from rural area where awareness regarding the usefulness of palliative care in rather poor.
Background: Our goal is to give a good quality of life in these Parkinson patients. Objective of this study is to identify the main difficulties in achieving the above goal in a rural village setting in India
Methods: Parkinson patients in need of palliative care in various villages in of rural India were selected for this study. Their symptoms and managements in that rural surroundings were evaluated by an NGO (under the guidance of a senior palliative care specialist & neurologist) working in that area. An attempt was made to identify the main obstacles in getting proper palliative care in a rural setting.
Results: In most these patients psychological symptoms control were grossly inadequate due to lack of properly trained manpower in the rural India. However regular homecare visits by a group of social workers were of immense help in the last few months of life. NGO team was well guided by a palliative care specialist.
Conclusions: There is a wide gap of trained manpower in this filled in rural areas of India. Dedicated groups from rural area itself need encouragement and proper training, so that difficult symptoms can be managed locally along with necessary social and psychological support to these patients.
To cite this abstract in AMA style:A. Manna, L. Khanra. Parkinson’s disease and palliative care [abstract]. Mov Disord. 2018; 33 (suppl 2). https://www.mdsabstracts.org/abstract/parkinsons-disease-and-palliative-care/. Accessed December 5, 2023.
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MDS Abstracts - https://www.mdsabstracts.org/abstract/parkinsons-disease-and-palliative-care/