Data-driven operational definition of square-wave jerks to optimize diagnostic discrimination of progressive supranuclear palsy
Objective: To use a data-driven approach to create an optimal SWJ definition and to assess its diagnostic utility in PSP. Background: The Movement Disorder Society…Smartwach Actigraphy for Detection of REM Sleep Behavior Disorder: The dBM-DEV Study
Objective: To evaluate feasibility and performance of multi-night at-home recordings using a smartwatch to (1) detect REM sleep behavior disorder (RBD) compared with polysomnography (PSG)…Patient perspectives on meaningful symptoms and disease progression in Parkinson’s Disease (PD): Interim findings from the Patient Endpoint Preference Project (PEPP)
Objective: The Patient Endpoint Preference Project (PEPP) aims to identify and quantify early‑stage PD patients’ priorities around symptoms and their progression using patient‑reported questionnaires. The…Using Musical Groove to help People move in Parkinson’s: A Participatory Action Research Study of Music and Movement.
Objective: To co-design a questionnaire with people with Parkinson’s disease (PwP) examining how musical groove relates to movement, motivation, and wellbeing in daily life, and…Healthcare Utilization and Economic Burden in Patients with Friedreich’s Ataxia: Baseline Results of the PROFA Study
Objective: The study aimed to investigate healthcare utilization, costs, and the distribution of costs across ambulation levels among patients with Friedreich's ataxia. Background: Friedreich's ataxia…Transient Hemichorea Hemiballismus From A Punctate Centrum Semiovale Corona Radiata Infarct
Objective: To report a transient hemichorea–hemiballismus episode associated with a punctate centrum semiovale/corona radiata infarct and emphasize that strategic white-matter ischemia can produce prominent hyperkinesia…Disrupted Sleep and Daytime Sleepiness are Associated With Poorer Quality of Life in Advanced Parkinson’s Disease: ROSSINI Interim Results
Objective: To evaluate correlations between real-world (RW) improvements in Parkinson’s disease (PD)-related sleep disturbances with foslevodopa/foscarbidopa (LDp/CDp) treatment, daytime sleepiness, and quality of life (QoL).…A retrospective Chart Review of Clinical and Demographic Patterns in Essential Tremor
Objective: Essential tremor (ET) is the most common movement disorder, primarily affecting the upper limbs and often impairing daily functioning. Understanding the demographic and clinical…International, multicenter validation study of the Shame in Parkinson’s disease (SPARK) Scale
Objective: To evaluate the psychometric properties of the Shame in PARKinson’s disease (SPARK) Scale in Parkinson’s disease patients, using both classical test theory (CTT) and…Healthcare Resource Utilization and Associated Costs in Adults with Isolated Dystonia in the United States
Objective: To evaluate all-cause healthcare resource utilization (HCRU) and costs in adults with isolated dystonia in the United States. Background: Isolated dystonia is a rare,…
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