Taking the driver’s seat on Parkinson’s care
Objective: To provide insight into the unique service and support offered by the multidisciplinary health team to address the challenges and dilemmas faced by people…Targeted sequencing of regulatory regions shows potential SNVs affecting FXN gene expression in Friedreich’s ataxia patients
Objective: To investigate variations in regulatory regions of the FXN gene hampering its expression in Friedreich’s Ataxia (FRDA) patients. To investigate variations in regulatory regions…A baseline study for the first year of a diverse Parkinson’s Disease interdisciplinary clinic
Objective: To characterize patients at a new diverse, academic Parkinson’s Disease (PD) interdisciplinary clinic (IDC). Background: PD affects patients in nearly all spheres of life,…Chinese medicine pattern diagnostic criteria in clinical and epidemiological studies of Parkinson’s disease: a systematic review
Objective: To summarize the diagnostic criteria of Chinese medicine patterns (CMPs) adopted by clinical and epidemiological studies of Parkinson’s disease (PD). Background: One major reason…The phenomenon of unexpectedly high functional mobility in people with typical Parkinson’s disease. A cross-sectional data analysis.
Objective: To describe the frequency of people with typical Parkinson’s disease (PD) with unexpectedly high functional mobility (a high functional mobility despite the presence of…Challenges in Outcome Measure Selection in Multi-Arm Multi-Stage Clinical Trials in Parkinson Disease
Objective: The Edmond J Safra Accelerating Clinical Trials in Parkinson Disease (PD) initiative (EJS ACT-PD) aims to accelerate the identification of disease modifying treatment for…Clinical Manifestations of Metabolic Syndrome in Parkinson’s Disease – Report from Indonesia Tertiary Referral Hospital
Objective: The study aims to determine the prevalence of metabolic syndrome and related factors in Parkinson's disease (PD). Background: Parkinson's disease is a neurodegenerative disorder,…Involving people with lived experience of Parkinson’s in trial design: the EJS ACT-PD initiative
Objective: To maximally involve people with the lived experience of Parkinson’s in the design of the first multi-arm multi-stage (MAMS) trial for disease modifying therapies…Feasibility of using wearable sensors to monitor activity and sleep patterns in inpatients with delirium and Parkinson’s disease
Objective: To assess the feasibility of using wearable sensors in Parkinson's disease (PD) inpatients with/without delirium and to quantify clinically relevant digital outcomes to facilitate…International Telemedicine during COVID-19 Pandemic in an Academic Movement Disorder Clinic
Objective: To assess international patients’ access to medical care from their movement disorder specialist before and during the COVID-19 pandemic and the impact of the…
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