Advocacy for Neuropalliative Care in Parkinson Disease Care: The Need for an International Neuropalliative Care Society (INPCS)
Objective: To describe the International Neuropalliative Care Society (INPCS), its mission and values, and highlight the importance of palliative care for persons with movement disorders.…Accelerometry to optimize optical flow measurement of repetitive finger tapping movements: A pilot study
Objective: To optimize optical flow (OF) measurement of repetitive finger tapping movements with the use of concomitant accelerometry in healthy volunteers. Background: Repetitive finger tapping…Emotional, logistical and ethical aspects of voluntarily stopping eating and drinking in patients with movement disorders
Objective: We present two patients with atypical parkinsonism who chose to die by voluntarily stopping eating and drinking (VSED) to highlight the unique support and care needs associated…A novel tele-rehabilitation program aimed at reducing fall risk in Parkinson’s Disease patients
Objective: Our primary objective is to test the feasibility and preliminary efficacy of a novel falls-prevention program that uses videoconferencing technology to provide Parkinson’s Disease…Measuring Unmet Need in Underserved Parkinson’s Populations (UPPs)
Objective: To identify health care needs and barriers among people with Parkinson's disease who are underserved so as to inform strategies to better serve this…Health care provision and health related quality of life in late stage Parkinson’s disease
Objective: To describe and assess factors associated with health related quality of life (HRQoL) in late stage Parkinson’s disease (PD), with a special focus on…Advance Care Planning in Complex Stage Parkinson’s Disease
Objective: Advance Care Planning (ACP) in patients with Complex stage Parkinson’s disease (PD) at the Royal Berkshire Foundation Trust (RBFT),Reading,United Kingdom. Background: In April 2019,…User experience of body-worn sensors: perception of patients and health professionals for Parkinson’s disease at home follow-up
Objective: With a view to introducing routine care, this qualitative study addresses the questions of the choice of body-worn sensors (BWS) according to the context…Patient survey on personal preferences and choices regarding Advance Care Planning(ACP) in Parkinson’s Disease(PD)
Objective: Understanding patients' choices and preferences in the advanced stage Parkinson’s disease. Background: Surveys of patients' experiences are increasingly recognized as an essential part of…Association between actively and passively monitored gait in early Parkinson’s disease
Objective: To determine the the reliability and preliminary validity of passively acquired sensor features of gait in individuals with early Parkinson’s disease (PD). Background: Passive…
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