Perspectives on care for late stage Parkinson’s disease
Objective: The aim of this study was to explore experiences of late stage Parkinson's disease (PD) patients' and their informal caregivers’ satisfaction with care and support,…Time matters in brain health: how can health systems respond to the growing demand for genetic testing?
Objective: The global burden of neurodegenerative disease is increasing and health systems are not yet equipped to manage large numbers of people who are at…Laryngeal movement disorders as a potential clinical biomarker in multiple system atrophy: Results from the LaPD study
Objective: To systematically assess frequency and nature of laryngeal dysfunction in multiples system atrophy (MSA) compared to Parkinson’s disease (PD) and to identify a potential…Disparities in access to care and research participation among individuals with advanced Parkinson’s Disease: Comparison of participants in a home visit model vs. national registry
Objective: We sought to identify whether those with advanced Parkinson’s disease (PD) who become homebound are sociodemographically different than those who continue to attend outpatient…The Benchmark Clinic: A Comprehensive Care Model for People with Parkinson’s Disease
Objective: To determine whether an interdisciplinary one-stop care model improves (1) patient engagement and (2) patient outcomes for people with Parkinson's disease (PwP). Background: PwP…Measuring Unmet Need in Underserved Parkinson’s Populations (UPPs)
Objective: To identify health care needs and barriers among people with Parkinson's disease who are underserved so as to inform strategies to better serve this…Health care provision and health related quality of life in late stage Parkinson’s disease
Objective: To describe and assess factors associated with health related quality of life (HRQoL) in late stage Parkinson’s disease (PD), with a special focus on…Advance Care Planning in Complex Stage Parkinson’s Disease
Objective: Advance Care Planning (ACP) in patients with Complex stage Parkinson’s disease (PD) at the Royal Berkshire Foundation Trust (RBFT),Reading,United Kingdom. Background: In April 2019,…User experience of body-worn sensors: perception of patients and health professionals for Parkinson’s disease at home follow-up
Objective: With a view to introducing routine care, this qualitative study addresses the questions of the choice of body-worn sensors (BWS) according to the context…Predicting the functional impact on the performance of daily activities in people with PD: a novel approach based on objective measures obtained by inertial sensors
Objective: To predict global motor disabilities using symptomatology assessed with inertial sensors, medication regimen, and cognitive deficits through: (1) a clustering method on performance metrics…
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