Happy to be home: Satisfaction with interdisciplinary home visits among individuals with advanced Parkinson’s Disease and their caregivers
Objective: To compare satisfaction with medical care among people with advanced Parkinson’s Disease (PD) and their caregivers at baseline (best usual care in a tertiary…Evaluating the use of digital biomarkers to test treatment effects on cognition and motor in patients with Lewy Body Dementia
Objective: To evaluate if frequent cognitive and motor tests using an iPad app and a wrist-worn actigraphy watch to track activity and sleep can detect…Advocacy for Neuropalliative Care in Parkinson Disease Care: The Need for an International Neuropalliative Care Society (INPCS)
Objective: To describe the International Neuropalliative Care Society (INPCS), its mission and values, and highlight the importance of palliative care for persons with movement disorders.…Accelerometry to optimize optical flow measurement of repetitive finger tapping movements: A pilot study
Objective: To optimize optical flow (OF) measurement of repetitive finger tapping movements with the use of concomitant accelerometry in healthy volunteers. Background: Repetitive finger tapping…Time matters in brain health: how can health systems respond to the growing demand for genetic testing?
Objective: The global burden of neurodegenerative disease is increasing and health systems are not yet equipped to manage large numbers of people who are at…Laryngeal movement disorders as a potential clinical biomarker in multiple system atrophy: Results from the LaPD study
Objective: To systematically assess frequency and nature of laryngeal dysfunction in multiples system atrophy (MSA) compared to Parkinson’s disease (PD) and to identify a potential…Disparities in access to care and research participation among individuals with advanced Parkinson’s Disease: Comparison of participants in a home visit model vs. national registry
Objective: We sought to identify whether those with advanced Parkinson’s disease (PD) who become homebound are sociodemographically different than those who continue to attend outpatient…The Benchmark Clinic: A Comprehensive Care Model for People with Parkinson’s Disease
Objective: To determine whether an interdisciplinary one-stop care model improves (1) patient engagement and (2) patient outcomes for people with Parkinson's disease (PwP). Background: PwP…Measuring Unmet Need in Underserved Parkinson’s Populations (UPPs)
Objective: To identify health care needs and barriers among people with Parkinson's disease who are underserved so as to inform strategies to better serve this…Health care provision and health related quality of life in late stage Parkinson’s disease
Objective: To describe and assess factors associated with health related quality of life (HRQoL) in late stage Parkinson’s disease (PD), with a special focus on…
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