Measuring Unmet Need in Underserved Parkinson’s Populations (UPPs)
Objective: To identify health care needs and barriers among people with Parkinson's disease who are underserved so as to inform strategies to better serve this…Health care provision and health related quality of life in late stage Parkinson’s disease
Objective: To describe and assess factors associated with health related quality of life (HRQoL) in late stage Parkinson’s disease (PD), with a special focus on…Advance Care Planning in Complex Stage Parkinson’s Disease
Objective: Advance Care Planning (ACP) in patients with Complex stage Parkinson’s disease (PD) at the Royal Berkshire Foundation Trust (RBFT),Reading,United Kingdom. Background: In April 2019,…User experience of body-worn sensors: perception of patients and health professionals for Parkinson’s disease at home follow-up
Objective: With a view to introducing routine care, this qualitative study addresses the questions of the choice of body-worn sensors (BWS) according to the context…Predicting the functional impact on the performance of daily activities in people with PD: a novel approach based on objective measures obtained by inertial sensors
Objective: To predict global motor disabilities using symptomatology assessed with inertial sensors, medication regimen, and cognitive deficits through: (1) a clustering method on performance metrics…Impact of caring for patients with Huntington’s disease on work status
Objective: To describe changes in the employment status of family members caring for a person with Huntington’s disease (HD) in the US and Europe. Background:…Establishing the first apomorphine treatment registry in Thailand: prospective data collection to inform optimal care of Parkinson’s disease patients
Objective: To establish a registry of PD patients in Thailand treated with subcutaneous apomorphine (APO) injection or infusion to allow prospective data collection from the…Ancillary Service Utilization and Impact in Huntington’s Disease
Objective: To determine which Huntington’s disease (HD) patient characteristics correlate with ancillary service utilization. To examine the longitudinal impact of ancillary therapies on clinical characteristics.…Implementation of a Peer-to-Peer Mentoring Intervention for Center of Excellence Coordinators
Objective: Through the Centers of Excellence (COE) network, the Parkinson’s Foundation (PF) unites a community dedicated to improving clinical care in Parkinson’s disease (PD). Each…Spectrum of motor complications in advanced Parkinson’s disease: data from a large Romanian case series evaluated for suitability for device aided therapy
Objective: The objective was to describe the spectrum of motor complications in a large cohort of patients with advanced Parkinson’s Disease (APD) who received at…
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