Time matters in brain health: how can health systems respond to the growing demand for genetic testing?
Objective: The global burden of neurodegenerative disease is increasing and health systems are not yet equipped to manage large numbers of people who are at…Laryngeal movement disorders as a potential clinical biomarker in multiple system atrophy: Results from the LaPD study
Objective: To systematically assess frequency and nature of laryngeal dysfunction in multiples system atrophy (MSA) compared to Parkinson’s disease (PD) and to identify a potential…Disparities in access to care and research participation among individuals with advanced Parkinson’s Disease: Comparison of participants in a home visit model vs. national registry
Objective: We sought to identify whether those with advanced Parkinson’s disease (PD) who become homebound are sociodemographically different than those who continue to attend outpatient…The Benchmark Clinic: A Comprehensive Care Model for People with Parkinson’s Disease
Objective: To determine whether an interdisciplinary one-stop care model improves (1) patient engagement and (2) patient outcomes for people with Parkinson's disease (PwP). Background: PwP…Factors Influencing Decision-Making About End of Life Care in Patients With Parkinson’s Disease and Their Family Members
Objective: The aim of the research was to determine factors influencing decision-making about end of life care in patients with Parkinson´s disease (PD) and their…Applicability of short form of Montreal Cognitive Assessment to Brazilian Portuguese
Objective: The aim of this study was to compare the efficiency of the short form of Montreal Cognitive Assessment (s-MoCa) which has been validated in…Predicting the functional impact on the performance of daily activities in people with PD: a novel approach based on objective measures obtained by inertial sensors
Objective: To predict global motor disabilities using symptomatology assessed with inertial sensors, medication regimen, and cognitive deficits through: (1) a clustering method on performance metrics…Impact of caring for patients with Huntington’s disease on work status
Objective: To describe changes in the employment status of family members caring for a person with Huntington’s disease (HD) in the US and Europe. Background:…Establishing the first apomorphine treatment registry in Thailand: prospective data collection to inform optimal care of Parkinson’s disease patients
Objective: To establish a registry of PD patients in Thailand treated with subcutaneous apomorphine (APO) injection or infusion to allow prospective data collection from the…Ancillary Service Utilization and Impact in Huntington’s Disease
Objective: To determine which Huntington’s disease (HD) patient characteristics correlate with ancillary service utilization. To examine the longitudinal impact of ancillary therapies on clinical characteristics.…
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