Palliative Virtual Home Visits for Atypical Parkinsonian Disorders (PVH-Park Study)
Objective: To determine the feasibility and preliminary efficacy of implementing multidisciplinary "palliative virtual home" (PVH) visits for caregivers (CGs) & patients with Atypical Parkinsonian Disorders…Caregiver Burden in a Multidisciplinary MSA Clinic
Objective: To explore the correlation between disease and caregiver burden in MSA. Background: For patients with Multiple System Atrophy (MSA), the increasing loss of independence…Efficacy of multidisciplinary care in people with Parkinson’s disease: A systematic review and meta-analysis
Objective: This study aims to systematically review the evidence investigating the efficacy of multidisciplinary Parkinson’s disease (PD) care on physical and quality of life outcomes…Motor limitations are the most distressing alterations for people living with Parkinson’s disease?
Objective: To show the perception of people with PD and their care partner about the more disturbing alteration associated to PD among the members of…Predictive factors of quality of life evolution in Parkinson’s disease patients participating in a therapeutic patient education program
Objective: Identify factors associated with an improvement in quality of life in Parkinson’s disease (PD) among patients participating to a therapeutic education program. Background: Therapeutic…Attitudes to Palliative Care in Movement Disorder Physicians in the UK
Objective: The objective of this project was to determine attitudes toward palliative care (PC) of physicians in the UK who manage movement disorder. Care of…Does the degree of improvement after deep brain stimulation surgery for Parkinson’s disease (PD) meet the patient’s expectations?
Objective: This research is a quantitative, exploratory study, which aims to identify the symptoms that patients expect to improve with Deep brain stimulation (DBS) and…The establishment of Deep Brain Stimulation Nurse Association (DBSNA) in United Kingdom (UK)
Objective: This is a qualitative analysis in the establishment of DBSNA for specialist nurses working in neuromodulation in the UK. Background: Surgical movement disorder nurses…Sing to Beat Parkinson’s®: A Group Singing Intervention for People with Parkinson’s and their Carers
Objective: To improve the quality of life (QoL) of People with Parkinson’s (PwP) and their carers using a group singing intervention Background: As Parkinson’s disease…A controlled trial of ParkinSong singing groups to improve communication and wellbeing in Parkinson’s disease
Objective: To explore the effects of a therapeutic group singing intervention (ParkinSong) on communication and wellbeing outcomes for people living with Parkinson's disease. Background: Communication…
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