MDS Guidance Framework for Electronic Clinical Outcome Assessments: Updating Practices for Validation and Implementation
Objective: To present the draft International Parkinson and Movement Disorder Society (MDS) guidance framework for validating, evaluating, and implementing electronic clinical outcome assessments (eCOAs). Background:…Retrospective Video-Based Motor Assessment: Feasibility and Inter-Rater Variability in Remote Scoring
Objective: To assess the feasibility of extracting video-derived motor biomarkers from retrospective clinical recordings in Parkinson's disease (PD) and quantify agreement with clinician-rated MDS-UPDRS Part III item…Pain Assessment using Parkinson’s Disease Pain Classification System (PD-PCS) and King’s Parkinson Disease Pain Scale (KPPS) – a Comparative Study
Objective: To evaluate and compare the applicability of KPPS and the PD-PCS in patients with Parkinson’s disease Background: Pain assessment in PD remains a relevant…Implementation and Evaluation of a Pre-Clinic Questionnaire to Improve Data Capture and Consultation Efficiency in Parkinson’s Disease Clinics: A Multi-Centre Pilot Study
Objective: To evaluate the feasibility, usability, and clinical value of a pre-clinic questionnaire for patients attending Parkinson’s disease nurse specialist clinics. Background: Parkinson’s disease (PD)…Are we overlooking wearing off? Evaluating the role of the WOQ-9 questionnaire in routine Parkinson’s care
Objective: 1. Evaluate clinicians’ ability to recognise wearing-off compared with the Wearing Off Questionnaire-9 (WOQ-9)2. Assess patient awareness of wearing-off symptoms Background: Wearing off is…Implementation of a Hindi REDCap Instrument for the Unified Parkinson’s Disease Rating Scale (UPDRS)
Objective: To develop a Hindi-language electronic instrument of the Unified Parkinson’s Disease Rating Scale (UPDRS) within the REDCap system, ensuring accurate representation of the validated…Performance of the functional staging of Parkinson’s disease using the Neuronal aSynuclein Disease Integrated Staging System (NSD-ISS) in the Critical Path for Parkinson’s (CPP) Integrated Parkinson’s Database
Objective: To evaluate the utility of the NSD-ISS for clinical staging of Parkinson’s disease (PD) by examining stage distribution, longitudinal stage transitions, and demographic predictors…FuRST 2.0, A Patient Reported Outcome (PRO) Measure of Functional Ability in Huntington’s Disease (HD): Getting Response Options Right
Objective: To evaluate the response options on the FuRST 2.0 measure of HD functional ability. Background: FuRST 2.0 is a PRO created to detect changes…Clinical Stage According to Hoehn & Yahr Scale as a Predictor of Non-Motor Symptom Severity in Parkinson’s Disease: A Cross-Sectional in Peru
Objective: To determine the association between clinical stage of Parkinson's disease (PD), according to the Hoehn & Yahr (H&Y) scale, and the severity of non-motor…Metabolic Syndrome and Disease Severity in Parkinson’s Disease: Association With Clinical Phenotype and Cerebral Small Vessel Disease
Objective: To evaluate the association between Parkinson’s disease (PD) severity (Hoehn & Yahr, H&Y; mild–moderate–severe) and metabolic syndrome (MetS) defined separately by NCEP-ATP III and…
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