Item Response Theory Analysis of the MDS-UPDRS Motor Examination: Tremor vs. Non-tremor Items
Objective: To investigate the dimensionality of MDS-UPRS Motor Examination (Part 3) using Item Response Theory (IRT). Background: In Parkinson's disease (PD), tremor severity behaves differently…Novel exploratory outcome assessments in GENERATION HD1
Objective: To improve collection of outcomes meaningful to patients with Huntington’s disease (HD) and their families, through the development of novel assessments of daily functional…Vascular Parkinsonism and Parkinson’s Disease: clinical differences concerning balance impairment
Objective: Determine and compare lower body predominance and balance between Vascular Parkinsonism (VP) and Parkinson’s Disease (PD)patients in a hospital-based sample. Background: Despite the recognition…Using functional status to aid interpretation of cUHDRS scores in patients with Huntington’s disease
Objective: To enhance understanding of the composite Unified Huntington’s Disease Rating Scale (cUHDRS) scoring by linking to established measures of meaningful daily function and independence…The Progressive Supranuclear Palsy Functional Disability Scale: Sensitivity to change
Objective: To determine the sensitivity to change within 12 months as well as completion time of the Progressive Supranuclear Palsy Functional Disability Scale (PSPFDS). Background:…Assessment of Caregiver Burden in Huntington’s disease
Objective: We aim to identify and characterize caregiver burden among HD caregivers, to see what aspects of HD caregiving are associated with the greatest burden…A characterization of the ADL-level in daily life with Parkinson`s Disease based on objective measurements and subjective experiences.
Objective: 1. Test whether slow response to the medication and EMO-periods (Early Morning Off), affects the patient`s experience of being able to perform ADL-functions. 2.…Parkinson Kinetigraph – does it change the management of PD patients?
Objective: This pragmatic randomized open trial evaluated if the information from a Parkinson Kinetigraph (PKG) recording changed the management of PD patients at a visit…MDS-UPDRS Part III predictors of Part II Item Scores in PPMI
Objective: To identify the items in Part III of the MDS-UPDRS scale that are predictive to Part II items in early PD patients. Background: It…The progression rate of sporadic adult-onset cerebellar ataxia : 1-year follow up study
Objective: To assess progression rate of the sporadic adult-onset ataxia (SAOA) and usefulness of well-known evaluation tools. Background: The sporadic adult-onset ataxia (SAOA) is a…
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