Parkinson’s Disease Stigma Questionnaire (PDStigmaQuest): Development and Pilot Study of a Questionnaire for Stigma in Patients with Idiopathic Parkinson’s Disease
Objective: This pilot study aimed to develop and test a stigma questionnaire specific to patients with Parkinson’s disease (PDStigmaQuest). Background: Stigma is significant in PD.…MDS-UPDRS III Off Severity Level changes as a marker of DBS response
Objective: To determine the change in MDS-UPDRS III severity level after Subthalamic Nucleus Deep Brain Stimulation (STN-DBS) in patients with Parkinson’s disease (PD) and evaluate…Reliability of the severity subscale of the Toronto Western Spasmodic Torticollis Rating Scale in a multidisciplinary team
Objective: To assess the inter-rater reliability of the severity subscale of the Toronto Western Spasmodic Torticollis Rating Scale (TWSTRS) in a multidisciplinary team. Background: The…Living with Parkinson’s disease scale: First validation study among English-speaking population
Objective: To analyse the psychometric properties of the English version of the Living with long term conditions (LwLTCs) scale in people living with Parkinson’s disease…A baseline study for the first year of a diverse Parkinson’s Disease interdisciplinary clinic
Objective: To characterize patients at a new diverse, academic Parkinson’s Disease (PD) interdisciplinary clinic (IDC). Background: PD affects patients in nearly all spheres of life,…Progression of the Clinical Features of Progressive Supranuclear Palsy-Richardson Syndrome in Early and Advanced Stages
Objective: We sought to evaluate PSP-Richardson syndrome (PSP-RS) for uniformity of progression over nearly the entire disease course. Rather than comparing scores to the simple…Predicting ALS progression using remote sensor-based assessments
Objective: To develop a predictive model of amyotrophic lateral sclerosis (ALS) progression using self-administered digital assessments. Background: Remote fit-for-purpose sensor-based assessments stand to enhance the…Validation of the Patient Reported Outcomes in Parkinson’s Disease scale in outpatients
Objective: To validate PRO-PD in a random sample of outpatients with PD. Background: Successful treatment of Parkinson's disease (PD) requires symptom monitoring. Patient-Reported Outcomes in…Electronic Development of the MDS-UPDRS and MDS-NMS: Process and User Feedback
Objective: To describe the processes for development and obtaining user feedback of the electronic versions of the MDS Unified Parkinson’s Disease Rating Scale (MDS-UPDRS) and…Development and Validation of an Algorithm to Automatically Assess Motor Symptoms of Parkinson’s Disease
Objective: To assist non-specialists in evaluating patients with advanced Parkinson's disease who have difficulty visiting specialists’ hospitals, we developed an algorithm to automatically rate the…
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