Objective: To provide evidence-based services for patients with Parkinson’s disease considering the burden of disease in South Africa (SA) and access, socio economic and technology barriers present.
Background: The service was initiated at the largest hospital in SA in 2019 by the Speech-language therapy department. The service has grown tremendously since and has been successful in identifying patients, providing individualized therapy that streamlines best practices for patients amidst the challenges in a low- middle-income country and collaborating with various health care workers.
Method: The team conducted a review of evidence-based literature for patients. The presenter will provide insight into the innovative services offered through a qualitative approach as well as feedback from health care workers and patients.
Results: The service addressed innovation on many levels. No other service of this nature is available, making this service unique to the SA public health sector. Screening allowed us to identify 155 patients to date. It facilitated raising awareness of the rehabilitation team ensuring the sustainability of new referrals. Evidence-based interventions were implemented and adapted where possible for patients who can now access a hybrid model of care which include telehealth and in-person consultations. This has decreased transport and other logistical costs incurred. A total of 407 consultations were provided using the hybrid model of care. The previous static model for therapy may have only yielded a quarter of those attendances with sub optimal patient outcomes. A detailed culturally and contextually relevant home exercise program and tracking tool was designed as part of the package of care to ensure carryover of therapy. A monthly information sharing, and support group was created. Teamwork is the essence of this group and collaboration between various health care professionals to provide holistic patient care is highlighted.
Conclusion: Building on the principle of “leaving no one behind” our vision is aligned with Goal 3 and 10 of the Sustainable Development Goals and goals of the African Union agenda 2063.There are many patients with Parkinson’s disease that lack knowledge of health care services offered. This service alleviates this challenge and provides a gateway to evidence-based therapy enhancing patient’s quality of life.
References: None
To cite this abstract in AMA style:
S. Govender, S. Haffejee. Breaking Barriers to Offer Evidence-Based Services for Patients with Parkinson’s Disease in South Africa [abstract]. Mov Disord. 2024; 39 (suppl 1). https://www.mdsabstracts.org/abstract/breaking-barriers-to-offer-evidence-based-services-for-patients-with-parkinsons-disease-in-south-africa/. Accessed October 12, 2024.« Back to 2024 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/breaking-barriers-to-offer-evidence-based-services-for-patients-with-parkinsons-disease-in-south-africa/