Objective: We aimed to assess the feasibility of home videos made on smart phone as a supplemental tool to paper based diary in registering the motor states.

Background: Paper based diaries are the most commonly used method to ascertain the motor complications in patients with Parkinson’s disease.The accurate entry for the various motor states in paper based diary entry may be dependent on patient’s education and understanding. Home videos may supplement paper based diaries in correctly identifying the motor states.

Method: A total of 128 patients with Parkinson’s disease with motor complications without dementia were enrolled in the study from a Movement disorder clinic of a tertiary hospital in India. We explained the patient and caregivers about the various motor states of the patient (OFF, ON and dyskinesia )and gave them paper- based diary with Hindi translation to enter hourly recording. We also asked patients to make videos of the various states made every hour for 5 minutes when patient was awake and mark them in the chart. We devised a Quality of video scale which scored the quality of the videos.Patients marked the timing of video recordings made and the corresponding entry  in the PD diary. We then checked the entries made under the various headings in the diary and the motor state of the patient according to the videos .We calculated the proportion of patients who correctly entered each motor state in the paper based diary considering the video assessment as the gold standard.

Results: Of the 128 patients, 94 patients followed the instructions and completed the PD diary and recorded home videos for the three motor states of the patient. Mean age of our patients 57.7±11.5 years and 64 were male. 82(87.2%) patients had less than high school education.A total of 61 patients video scored 6-8 which was graded as of acceptable quality to assess the motor complication,18 patients video were of poor but acceptable quality and 6 patients had poor quality (were not included). The percentage of correct entry of motor state based on Video evaluation was 80.7% for OFF,90.9% for ON and 59.1% for dyskinesia.

Conclusion: In resource strained countries, home videos made on smart phone can supplement paper-based diary in correctly identifying motor states. Dyskinesia charting in the paper based diary has more errors compared to OFF and ON state.

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MDS Abstracts - https://www.mdsabstracts.org/abstract/home-videos-made-on-smart-phone-supplements-paper-based-diary-for-correct-identification-of-motor-states-in-parkinsons-disease/