Session Information
Date: Monday, June 5, 2017
Session Title: Quality Of Life/Caregiver Burden in Movement Disorders
Session Time: 1:45pm-3:15pm
Location: Exhibit Hall C
Objective:
To investigate a supported self-management model of care, PD Check-In, for long term maintenance of speech, communication and quality of life in Parkinson’s Disease (PD) over two years following intensive treatment.
Background: Ninety percent of people with PD will develop the speech disorder hypokinetic dysarthria as the disease progresses. The changes in speech and communicative function result in social isolation and a diminished quality of life for people with PD and their families. Speech-language pathology provides intensive, evidence-based treatment for the speech disorder in PD through the Lee Silverman Voice Treatment (LSVT LOUD). On completion of treatment, home practice is recommended on a daily basis. However, currently there is no evidence-based management plan for the long- term maintenance of speech following intensive treatment.
Methods: A total of 20 participants with PD and family members will be recruited to the study. Participants undergo LSVT LOUD followed by the PD Check-In program in which they will be reviewed by a SLP at 6 and 12 weeks, and at 6,12, and 24 months post LSVT LOUD. The PD Check-In intervention leads reflection and discussion of self-management themes and allows for treatment revision and development of strategies and goal setting for ongoing speech maintenance and quality of life. A repeated measures longitudinal study design will examine clinical outcome, quality of life and participant satisfaction measures pre and post LSVT LOUD and at each of the PD Check-In time points over two years.
Results: The preliminary results for 6 participants from this study will be presented.
Conclusions:
PD Check-In is a model for supported self-managed maintenance of speech and communication following LSVT LOUD. Preliminary results suggest that PD Check-In facilitates the improvement of speech characteristics and develops increased awareness of communication in everyday life.
References: Bandura, A. (1997). Self-efficacy: The exercise of control. New York, NY: W.H. Freeman & Co. Miller, N., Noble, E., Jones, D., Allcock, L., Burn, D.J. (2008). How do I sound to me? Perceived changes in communication in Parkinson’s disease. Clinical Rehabilitation, 22, 14-22. doi: 10. 1177/0269215507079096
To cite this abstract in AMA style:
A. Finnimore, D. Theodoros, A. Rumbach. PD Check-In: Supporting people with Parkinson’s Disease in self-managed maintenance of communication following intensive speech treatment [abstract]. Mov Disord. 2017; 32 (suppl 2). https://www.mdsabstracts.org/abstract/pd-check-in-supporting-people-with-parkinsons-disease-in-self-managed-maintenance-of-communication-following-intensive-speech-treatment/. Accessed June 14, 2025.« Back to 2017 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/pd-check-in-supporting-people-with-parkinsons-disease-in-self-managed-maintenance-of-communication-following-intensive-speech-treatment/