Category: Palliative Care
Objective: Our service aims to provide integrated care for older people living with movement disorders.
We review our patients in the own home and coordinate their care.
We aim to support our patients to live well and die well with their Parkinson’s, with improved access to multidisciplinary team support and advanced care planning.
Background: We established our community movement disorder service in 2018. Our service is based in Salford, Greater Manchester in the United Kingdom. Our service is delivered by 2 geriatricians and a Parkinson’s disease nurse specialist. We support predominantly support older people living with parkinsonian movement disorders. The people we care for are in the complex or palliative phase of their illnesses and are often living with frailty.
Method: Our service involves a weekly clinic of home visits, weekday telephone service and a monthly palliative care multi-disciplinary meeting.
Our reviews are structured around Comprehensive Geriatric Assessment. We offer advance care planning and referrals to therapy and palliative care teams, who we offer joint reviews with. We support our patient’s families during times of crisis and early bereavement.
Results: We have cared for 237 people between May 2018 and December 2023. Our patient’s average age is 79 (38-96). 54.4% of our patients were living in their own home at first review, 45.6% were living in care homes.
66.4% were living with Idiopathic Parkinson’s disease, 10.5% with Lewy Body Dementia, 10.5% with vascular parkinsonism and 7% with parkinsonian plus conditions.
Our patients are living with frailty, 93.3% had a Clinical Frailty Scale score ≥6. 67.6% of our patients were living with dementia.
We have transferred the long -term care of 90 people from neurology service and 84 people from geriatric medicine clinic. 34 of these patients had not been reviewed in the 12 months prior to our first review. We have provided new diagnostic opinions for 48 people, who struggled to attend clinics.
53.2% of our patients have died whilst under our care. 64.2% have died in their own home or care home, 33.3% in hospital and 1.6% in hospices.
Conclusion: We would like to present details of how we established and developed our service. We would like to share examples of our patient’s journeys.
To cite this abstract in AMA style:
T. Jones, C. Miller, C. Lim. Salford’s Community Based Movement Disorder Service: Providing integrated care for people in their own homes. [abstract]. Mov Disord. 2024; 39 (suppl 1). https://www.mdsabstracts.org/abstract/salfords-community-based-movement-disorder-service-providing-integrated-care-for-people-in-their-own-homes/. Accessed May 21, 2025.« Back to 2024 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/salfords-community-based-movement-disorder-service-providing-integrated-care-for-people-in-their-own-homes/