Remote Longitudinal Follow-up of Participants in the Parkinson’s Progression Markers Initiative (PPMI)
Objective: To assess a personalized protocol focused on maintaining contact for long-term follow-up of current and former clinical research participants Background: PPMI-FOUND enrolls participants at…The Impact of the Edmond J. Safra Nurse Educator Program at the Parkinson’s Foundation on Nursing Education and Parkinson’s Care
Objective: To explore the influence of the Edmond J. Safra Nurse Educator Program on nursing education and its impact on preparing future nurses to care for…Clinical and Patient-Reported Outcomes in Patients With and Without Severe Bradykinesia According to Sensor Measurements
Objective: To explore clinical and patient-reported outcomes in patients with and without severe sensor-measured bradykinesia in patients with Parkinson’s disease (PD). Background: Parkinson's disease (PD)…Effects of Bright Light Therapy On Sleep And Functional Brain Networks In Parkinson’s Disease-A Pilot Trial
Objective: To investigate whether bright light therapy (BLT) improves sleep-related symptoms and to explore the potential functional brain network mechanisms underlying BLT in Parkinson’s disease…Slow-SPEED-US: Initiation of a Remote Exercise Trial in LRRK2 and GBA1 Carriers
Objective: To describe the launch of Slow-SPEED-US, presenting recruitment results and baseline characteristics of the enrolled subsample. Background: Slow-SPEED-US is part of a network of…Impact of a Structured Patient Education Module on Knowledge of Botulinum Toxin Therapy, Goal Attainment, and Treatment Satisfaction in Cervical Dystonia
Objective: To evaluate the impact of a structured patient education program on knowledge and goal attainment, measured by the structured Goal Attainment Scale (GAS), following…Baseline characteristics of fallers versus non-fallers in a remote, decentralized study of Parkinson’s disease
Objective: To compare the baseline characteristics of fallers versus non-fallers in a remote, decentralized study of Parkinson’s disease (PD) participants. Background: Falls are common in…Axonal-demyelinating polyneuropathy after subcutaneous foslevodopa/foscarbidopa infusion – case report.
Objective: The aim of this report was to present a patient with Parkinson’s disease (PD) treated with continuous subcutaneous foslevodopa/foscarbidopa infusion (CSFLI) who developed axonal-demyelinating…Two-year Outcomes of Restless Legs Syndrome Following Globus Pallidus Interna Deep Brain Stimulation for Parkinson’s Disease
Objective: This study evaluated two-year outcomes of Restless Legs Syndrome (RLS) in a cohort of patients with Parkinson’s disease (PD) who underwent deep brain stimulation…Aggregation – Dependent Effects of Wild-Type and Mutant α-Synuclein on Synaptic Membrane Fusion
Objective: 1. What is the endogenous form of ⍺-Synuclein in various cell types?2. How do WT ⍺-Synuclein monomer and aggregates affect presynaptic membrane fusion and the…
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