Patient Advisory Boards: A Model for Patient Engagement in Parkinson’s Disease Comparative Effectiveness Research
Objective: To build a replicable, sustainable model of patient engagement in Parkinson’s disease (PD) comparative effectiveness research (CER) at academic research centers through patient advisory…Transauricular Vagus Nerve Stimulation (taVNS) for mild to moderate Parkinson’s Disease (PD)
Objective: We evaluated feasibility, safety, and preliminary efficacy of taVNS for motor and non-motor symptoms in mild to moderate PD. Background: Neuronal loss in the…A Mixed Methods Study on the Impact of Reading the Graphic Memoir My Degeneration: A Journey Through Parkinson’s on Patients with Parkinson’s Disease
Objective: To explore the impact of reading a graphic memoir on patients’ knowledge, mental health, and attitudes about living with Parkinson Disease (PD). Background: In…Evaluation of Actigraphy-Based Circadian Rhythm and Motor Function Measures for Monitoring Treatment of Lewy Body Dementia in PRESENCE Study
Objective: To evaluate if wrist actigraphy data can derive clinically meaningful information reflecting circadian rhythm and motor functions from patients with Lewy body dementia (LBD)…To Prescribe or Not to Prescribe: Assessing the impact of Parkinson’s nurse prescribers
Objective: Within the UK, after successful completion of a formally recognised programme Parkinson’s Nurse Specialists (PNS) can act as independent prescribers, and as part of…The position of students of communication sciences and disorders department at Ono Academic College regarding telepractice vs. face-to-face internship experience in speech and swallowing therapy for patients with movement disorders.
Objective: To assess the position of students from the communication sciences and disorders department (CSD) regarding telepractice vs. face-to-face internship in speech and swallowing therapy…Learning to PERSEVERE: Efficacy and Feasibility of Peer Mentor Support and Caregiver Education in Lewy Body Dementia
Objective: To examine the effects of peer mentoring on caregiving mastery, Lewy Body Dementia (LBD) knowledge, and dementia attitudes among LBD family caregivers. Background: Few…A facilitated self-management toolkit for people with Parkinson’s disease: A feasibility study of ‘Live Well with Parkinson’s
Objective: To assess the feasibility and acceptability of a theory and evidence-based digital facilitated self-management toolkit for people with Parkinson’s: ‘Live Well with Parkinson’s’. Background:…Telephone nursing care for Parkinson’s patients: one-year experience in a tertiary referral hospital in Italy
Objective: To establish a telephone nursing service led by a Parkinson Disease Nurse Specialists (PDNS) and monitor the one-year experience in a tertiary referral Italian hospital (Movement…Longitudinal Program to Prevent PD (LoPP-PD): Multimodal Risk Stratification Informs Personalized Intervention
Objective: Longitudinal evaluation of personalized intervention strategies informed by detailed clinical and laboratory biomarker analysis to reduce relative risk of Parkinson’s disease in first degree…
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