Pilot study of outpatient rehabilitation of patients with Huntington’s disease in Russia
Objective: The benefits of exercises and physical activity in Huntington's disease in terms of motor function, gait speed, and balance, as well as a range…Parkinson’s Disease Hospital Optimization Project
Objective: To describe The Parkinson’s Disease Hospital Optimization Project (PD-HOP) that we established to optimize inpatient care and improve the hospital experience and outcomes for…Learning to PERSEVERE: Efficacy and Feasibility of Peer Mentor Support and Caregiver Education in Lewy Body Dementia
Objective: To examine the effects of peer mentoring on caregiving mastery, Lewy Body Dementia (LBD) knowledge, and dementia attitudes among LBD family caregivers. Background: Few…Designing a multi-arm multi-stage trial for Parkinson’s
Objective: The Edmond J Safra ACT-PD initiative (EJS ACT-PD) is developing the first multi-arm multi-stage (MAMS) platform trial for potential disease modifying approaches for Parkinson’s…Telephone nursing care for Parkinson’s patients: one-year experience in a tertiary referral hospital in Italy
Objective: To establish a telephone nursing service led by a Parkinson Disease Nurse Specialists (PDNS) and monitor the one-year experience in a tertiary referral Italian hospital (Movement…Clinical and device-based predictors of improvement in motor experiences of daily living after a short-term multidisciplinary inpatient treatment: a cohort study
Objective: To determine predictors of improvement in motor experiences of daily living (m-EDL) after a multidisciplinary inpatient ‘PD multimodal complex treatment’ (PD-MCT) and clarify the…Patient and caregiver satisfaction of video-assisted telenursing in patients treated with LCIG
Objective: To evaluate the feasibility and patient satisfaction of video-assisted telenursing as well as demonstrate resolution for treatment-related issues in the real-word levodopa-carbidopa intestinal gel…The development of a screening tool to identify movement disorders in patients with inborn errors of metabolism
Objective: To develop a user-friendly rapid screening tool for non-movement disorder specialists to detect movement disorders in patients with inborn errors of metabolism. Background: Movement…Developing infrastructure for a multi-arm multi-stage trial in Parkinson’s
Objective: To scope and develop infrastructure for the first multi-arm multi-stage (MAMS) platform trial for Parkinson’s disease, the Edmond J Safra ACT-PD initiative (EJS ACT-PD).…Funding and Sustainability Challenges in Multi-Arm Multi-Stage Clinical Trials in Parkinson Disease
Objective: The Edmond J Safra Accelerating Clinical Trials in Parkinson Disease (PD) initiative (EJS ACT-PD) aims to accelerate the identification of disease modifying treatment for…
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