Evaluation of Actigraphy-Based Circadian Rhythm and Motor Function Measures for Monitoring Treatment of Lewy Body Dementia in PRESENCE Study
Objective: To evaluate if wrist actigraphy data can derive clinically meaningful information reflecting circadian rhythm and motor functions from patients with Lewy body dementia (LBD)…Audit of dysphagia care provided to Parkinson’s patients during acute hospital admission
Objective: To evaluate dysphagia recognition and management in Parkinson’s patients admitted to Royal Berkshire Hospital (RBH),Reading,UK according to National Confidential Enquiry into Patient Outcome and…Learning to PERSEVERE: Efficacy and Feasibility of Peer Mentor Support and Caregiver Education in Lewy Body Dementia
Objective: To examine the effects of peer mentoring on caregiving mastery, Lewy Body Dementia (LBD) knowledge, and dementia attitudes among LBD family caregivers. Background: Few…Designing a multi-arm multi-stage trial for Parkinson’s
Objective: The Edmond J Safra ACT-PD initiative (EJS ACT-PD) is developing the first multi-arm multi-stage (MAMS) platform trial for potential disease modifying approaches for Parkinson’s…Telephone nursing care for Parkinson’s patients: one-year experience in a tertiary referral hospital in Italy
Objective: To establish a telephone nursing service led by a Parkinson Disease Nurse Specialists (PDNS) and monitor the one-year experience in a tertiary referral Italian hospital (Movement…Clinical and device-based predictors of improvement in motor experiences of daily living after a short-term multidisciplinary inpatient treatment: a cohort study
Objective: To determine predictors of improvement in motor experiences of daily living (m-EDL) after a multidisciplinary inpatient ‘PD multimodal complex treatment’ (PD-MCT) and clarify the…Patient and caregiver satisfaction of video-assisted telenursing in patients treated with LCIG
Objective: To evaluate the feasibility and patient satisfaction of video-assisted telenursing as well as demonstrate resolution for treatment-related issues in the real-word levodopa-carbidopa intestinal gel…The development of a screening tool to identify movement disorders in patients with inborn errors of metabolism
Objective: To develop a user-friendly rapid screening tool for non-movement disorder specialists to detect movement disorders in patients with inborn errors of metabolism. Background: Movement…Developing infrastructure for a multi-arm multi-stage trial in Parkinson’s
Objective: To scope and develop infrastructure for the first multi-arm multi-stage (MAMS) platform trial for Parkinson’s disease, the Edmond J Safra ACT-PD initiative (EJS ACT-PD).…Funding and Sustainability Challenges in Multi-Arm Multi-Stage Clinical Trials in Parkinson Disease
Objective: The Edmond J Safra Accelerating Clinical Trials in Parkinson Disease (PD) initiative (EJS ACT-PD) aims to accelerate the identification of disease modifying treatment for…
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