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An outlook: Palliative care for patients with Parkinsonism syndrome

MI. Arain (Jamshoro, Pakistan)

Meeting: 2019 International Congress

Abstract Number: 779

Keywords: Apraxia, Parkinsonism

Session Information

Date: Tuesday, September 24, 2019

Session Title: Parkinsonisms and Parkinson-Plus

Session Time: 1:45pm-3:15pm

Location: Agora 3 West, Level 3

Objective: The main purpose of  study is to provide interventions and highlight the assessment of supportive care needs in Parkinson’s disease.

Background: A clinical syndrome known as parkinsonism is a combination of different complications such as bradykinesia, postural instability, rest tremor, apraxia and rigidity. It is a chronic neurodegenerative disease that requires supportive care and treatments including non pharmacological treatments, such as palliative care for patient, physiotherapy, family education, emotional support, general wellness maintenance, and nutrition.

Method: A cross-sectional study was conducted to find out the prospective of PD in resident of different rural and urban areas of Hyderabad, Pakistan. Initially stage, we used a expediency sample. However, as the study progressed, we gathered utmost verity of sampling to make sure the variety in terms of demographic data, Parkinsonism syndrome complications, treatment and management status. During study, total of 40 individual level interviews & 4 group of focus were held to obtain the information of patients, those are not satisfied to palliative care & preferences for addressing these needs. Interview domains & sample questions are based on communication, symptoms, Psychological, Quality of life

Results: Thus, almost in all patients described how social embarrassment and the unpredictable nature of symptoms led to restriction of activities and social withdrawal. Speech apraxia and gait issues were most common cause of withdrawal of social activities for patients (81%).after interventions and palliative care support their social activates increase for patients (48%). The concept of self and relationship changes affected patients’ sense of self in 68% cases and Depression is common in these patients. The majority of patients (92%) did not have any idea about palliative care and however, when educated on supportive care and management, patients responded positively. 68% patients believe that Religion and spirituality is a source of treatments and remaining patients consider meditation & prayer both are impotent for treatment

Conclusion: These results concluded the Parkinsonism syndrome and their complications are major burden on the person and also their families. So, palliative care is a supportive treatment for patients of Parkinsonism which treat and develop believe and hope of recovery in patients.

To cite this abstract in AMA style:

MI. Arain. An outlook: Palliative care for patients with Parkinsonism syndrome [abstract]. Mov Disord. 2019; 34 (suppl 2). https://www.mdsabstracts.org/abstract/an-outlook-palliative-care-for-patients-with-parkinsonism-syndrome/. Accessed May 21, 2025.
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