Session Information
Date: Wednesday, June 22, 2016
Session Title: Phenomenology and clinical assessment of movement disorders
Session Time: 12:00pm-1:30pm
Location: Exhibit Hall located in Hall B, Level 2
Objective: To evaluate Parkinson’s disease (PD) patients’ perception of their performance of daily living (ADL) in their “ON” and “OF” stages and relate them to objective fluctuating measures of movements, measured by Personal KinetiGraph (PKG™).
Background: Patients’ with advanced PD who fluctuate over the day may have different perceptions’ of their overall ability to engage into meaningful ADL. Self-perception might additionally differ while experiencing actual OFF and ON state. ADL performance depends on various factors, including motor abilities.
Methods: Four consecutive advanced PD patients (fluctuators) were assessed by the Canadian Occupational Performance Measure (COPM) and by the PKG™. COPM (Law et al, 1991) is standardized and well-validated semi-structured interview. It measures patients’ perception and satisfaction of meaningful and self-chosen ADLs. It is therefore patient-centred assessment. Patients scored their current level of performance and satisfaction with their performance from 1 (with great difficulty or not satisfied) to 10 (with no difficulties or completely satisfied). PD patients were assessed by the COPM and were asked to score their performance and satisfaction of self-chosen ADLs’ while they were in “ON” and “OFF” stage. For continuous evaluation of patients’ movements we used the PKG™ system. This is an objective, accelerometer based system for continuous monitoring of motor state. Patients wore PKG™ accelerometers for five days.
Results:
| Patient | Age/Sex | Disease duration/Fluctuations (yrs) | COPM-performance "ON"/"OFF" | COPM-satisfaction "ON"/"OFF" | % Disabling Daily Dyskinesia | % Disabling Daily Bradykinesia | FDS |
| 1 | 77/F | 7/2 | 5,75/1 | 5,75/1 | 28,4 | 34 | 11,6 |
| 2 | 53/F | 16/11 | 6,6/1,4 | 7,2/1,6 | 28 | 15,6 | 9,3 |
| 3 | 66/F | 15/9 | 2,7/1,25 | 2,5/1,5 | 19,8 | 48 | 11,3 |
| 4 | 76/M | 16/10 | 6/4 | 9/9 | 3,4 | 61,2 | 9,2 |
Conclusions: This was a pilot study. All patients were stable fluctuators according FDS score. Study indicates that PD patients engaged into ADL according to their perception of their ability to perform ADL, depending on their actual “ON” or “OFF” stage. Follow up studies with more data, including uncontrollable fluctuators, are needed to further explore the relationship between predictability of motor fluctuations’ and subjective perception of their performance and satisfaction of ADLs’.
To cite this abstract in AMA style:
J. Jansa, B. Piks, D. Flisar, M. Gregoric Kramberger, Z. Pirtosek. Self-perception of daily performance in relation to motor performance in advanced Parkinson’s disease – Case studies [abstract]. Mov Disord. 2016; 31 (suppl 2). https://www.mdsabstracts.org/abstract/self-perception-of-daily-performance-in-relation-to-motor-performance-in-advanced-parkinsons-disease-case-studies/. Accessed July 9, 2025.« Back to 2016 International Congress
MDS Abstracts - https://www.mdsabstracts.org/abstract/self-perception-of-daily-performance-in-relation-to-motor-performance-in-advanced-parkinsons-disease-case-studies/