Decline in functionality according to WHODAS 2.0 associated with disease progression in people with Parkinson’s disease
Objective: To investigate the decline in functionality according to WHODAS-2.0 from early to intermediate stages of PD. Background: Parkinson's disease (PD) is an incurable and…Taking the driver’s seat on Parkinson’s care
Objective: To provide insight into the unique service and support offered by the multidisciplinary health team to address the challenges and dilemmas faced by people…Targeted sequencing of regulatory regions shows potential SNVs affecting FXN gene expression in Friedreich’s ataxia patients
Objective: To investigate variations in regulatory regions of the FXN gene hampering its expression in Friedreich’s Ataxia (FRDA) patients. To investigate variations in regulatory regions…A baseline study for the first year of a diverse Parkinson’s Disease interdisciplinary clinic
Objective: To characterize patients at a new diverse, academic Parkinson’s Disease (PD) interdisciplinary clinic (IDC). Background: PD affects patients in nearly all spheres of life,…Chinese medicine pattern diagnostic criteria in clinical and epidemiological studies of Parkinson’s disease: a systematic review
Objective: To summarize the diagnostic criteria of Chinese medicine patterns (CMPs) adopted by clinical and epidemiological studies of Parkinson’s disease (PD). Background: One major reason…Innovating Clinical Trial Design to Accelerate Assessment of Disease-Modifying Treatments for Parkinson’s: The EJS ACT-PD Initiative
Objective: To design an optimal multi-arm, multi-stage (MAMS) platform trial for disease-modifying therapies (DMTs) in Parkinson’s disease (PD). Background: The current clinical trials process cannot…Movement Disorders (MD) Specialist Nurse pilot project in Australia’s Northern Territory (NT): One year of experience.
Objective: The MD Specialist Nurse, a project funded by the Commonwealth of Australia started 1 year ago to provide access to specialist nursing care and…Certification for advanced practice providers working in movement disorders expands access to quality expert and specialized care.
Objective: Elevate awareness of impact of a professional certification for APPs in PD & movement disorders (PMD), which increases access specialized care, improving outcomes. Demonstrate certification…Training an APRN in movement disorders: lessons learned
Objective: To discuss the development and implementation of a training program of a neurology-naïve Advanced Practice Registered Nurse (APRN) into a small academic movement practice…Chinese herbal medicine treatment based on subgroup differentiation as adjunct therapy for Parkinson’s disease: interim analysis of a pilot add-on, randomized, controlled, pragmatic clinical trial
Objective: This interim data analysis preliminarily evaluated the feasibility and effectiveness of protocolized CHM on motor-related daily living of PD patients. Background: A Chinese national…
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