The Impact of Standardized Recommendations on the Management of Initial and Refractory Pediatric Status Dystonicus
Objective: To develop consensus recommendations for the assessment, triaging and management of pre-status dystonicus, status dystonicus, and refractory status dystonicus in children. Background: Status dystonicus…Alexander technique remote-delivery group course for people living with Parkinson’s improves motor plan assembly time with correlated improvement in function
Objective: Alexander technique (AT) is a mind-body training that links inhibition, body schema, proprioception, and goal awareness to increase agency and enhance daily function. We…Time-Restricted Eating in Huntington’s Disease: Review of the Literature and a Proposed Clinical Trial
Objective: Review recent literature on time-restricted eating (TRE) in Huntington’s disease (HD) and outline our protocol for an upcoming clinical trial designed to assess the…Development and Feasibility Trial of iSupport-PD, a Digital intervention for carers of people with Parkinson’s and Cognitive Impairment
Objective: Develop a digital intervention to prevent or decrease the mental and physical health problems associated with caring and improve quality of life of carers…Randomized Controlled Trial of Supplementary Motor Area Transcranial Direct Current Stimulation in Tourette Syndrome
Objective: To investigate the effect of cathodal transcranial direct current stimulation (tDCS) over the supplementary motor area (SMA) on tic severity in Tourette syndrome (TS).…Experiences of a personalised intervention to support self-management in PwP – PD-Care: Live Well with Parkinson’s
Objective: 1) Evaluate acceptability and feasibility of the intervention2) Understand barriers and enablers to engagement and intervention improvement recommendations Background: We co-designed the ‘Live Well…EMPOWER-PD: Testing and evaluation of an 8-week co-created Self-management program tailored People with Parkinson`s disease and their caregivers in an interventional follow-up study
Objective: This study aims to test a 8-week self-management program, developed collaboratively with People with PD (PwP), caregivers, healthcare professionals and other stakeholders using a…Efficacy and Safety of Foslevodopa/Foscarbidopa in People With Parkinson’s Disease With and Without Care Partner Support
Objective: To assess the efficacy and safety of foslevodopa/foscarbidopa (LDp/CDp) in people with Parkinson’s (PwP) with and without care partner support. Background: The progression of…Territorial inventory of training needs in nursing home for the support of patients with Parkinson’s syndrome
Objective: - Raise awareness among the various professionals in contact with patients suffering from Parkinson's syndromes- Optimize follow-up and support- Avoid emergency room visits through…The Effect of Stochastic Resonance Stimulation in Neural Control of Balance During Walking in Parkinson Disease
Objective: This study aimed to investigate the effect of stochastic resonance (SR) stimulation on balance control during visually perturbed walking in people with Parkinson disease…
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