Specialized palliative care for advanced Parkinsonian syndromes: bridging the gap
Objective: The Advanced Care Team for Parkinson’s (ACT-PD) pilot program at the Calgary Movement Disorders Clinic aimed to bridge gaps in specialized palliative care for…Multipronged, Community-Engaged Approach to Recruiting Lewy Body Dementia Family Caregivers for a National Trial
Objective: Describe a three-tiered initiative to recruit Lewy Body Dementia (LBD) family caregivers into a national randomized controlled trial (PERSEVERE, NCT06389032). Background: LBD is often…Safety of Pimavanserin for Parkinson’s Disease Psychosis: Exploratory Analysis of Sedation and Sleep Data From Clinical Studies
Objective: To summarize the sleep and sedation-related safety and tolerability of pimavanserin for the treatment of Parkinson’s disease psychosis (PDP). Background: Pimavanserin, a 5-HT2A receptor…The Feasibility and Practical utility of Virtual Visits for Patients with Parkinson’s disease in Different World Regions
Objective: To investigate the feasibility and efficacy of virtual visits (TM) for Parkinson's Disease (PD) compared to in-person visits in different World Health Organization (WHO)…PreActive-PD Telehealth Coaching to Increase Physical Activity in Early-Stage Parkinson Disease: A Randomized Controlled Feasibility Trial
Objective: To assess the feasibility/acceptability, and preliminary efficacy of Pre-Active PD intervention delivered via telehealth to increase physical activity (PA) engagement in people with early-stage…The Impact of Standardized Recommendations on the Management of Initial and Refractory Pediatric Status Dystonicus
Objective: To develop consensus recommendations for the assessment, triaging and management of pre-status dystonicus, status dystonicus, and refractory status dystonicus in children. Background: Status dystonicus…Alexander technique remote-delivery group course for people living with Parkinson’s improves motor plan assembly time with correlated improvement in function
Objective: Alexander technique (AT) is a mind-body training that links inhibition, body schema, proprioception, and goal awareness to increase agency and enhance daily function. We…Time-Restricted Eating in Huntington’s Disease: Review of the Literature and a Proposed Clinical Trial
Objective: Review recent literature on time-restricted eating (TRE) in Huntington’s disease (HD) and outline our protocol for an upcoming clinical trial designed to assess the…Development and Feasibility Trial of iSupport-PD, a Digital intervention for carers of people with Parkinson’s and Cognitive Impairment
Objective: Develop a digital intervention to prevent or decrease the mental and physical health problems associated with caring and improve quality of life of carers…Randomized Controlled Trial of Supplementary Motor Area Transcranial Direct Current Stimulation in Tourette Syndrome
Objective: To investigate the effect of cathodal transcranial direct current stimulation (tDCS) over the supplementary motor area (SMA) on tic severity in Tourette syndrome (TS).…
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