Building a Global Parkinson’s Genetics Program (GP2): Clinical Cohorts Integration Working Group
Objective: To recruit Parkinson's Disease (PD) cohorts across the world for the global Parkinson's Genetics Program (GP2, http://gp2.org/), harmonise clinical data across cohorts for joint…Fragile X-Associated Tremor Ataxia Syndrome Rating Scale (FXTAS-RS): development process using the Delphi method
Objective: To develop a revised and improved version of the FXTAS-RS. Background: Accurate measurement of FXTAS motor symptoms is vital to provide valid and reliable…Predictors of Clinically Significant Quality of Life Impairment in Parkinson´s Disease. Results from the COPPADIS Cohort at 2 Years Follow-up.
Objective: The aim of the present study was to identify predictors of clinically significant quality of life (QoL) impairment in Parkinson´s disease (PD) patients from…The comparisons between UPDRS and MDS-UPDRS in evaluating motor dysfunctions after subthalamic nucleus deep brain stimulation
Objective: We aimed to examine whether MDS-UPDRS are able to detect longitudinal changes in motor functions after STN-DBS in comparison to UPDRS. Background: Although MDS-UPDRS…Using smartphone data to infer social behaviour in Parkinson’s: proof of principle and the impact of COVID19
Objective: To investigate the potential of using smartphone data to infer changes in social behaviour in people with Parkinson's and how this has been impacted…Open-Source Tremor Tracking for MR-guided Focused Ultrasound (MRgFUS): An Objective Approach for Monitoring Treatments
Objective: To describe a novel system developed for real-time noninvasive monitoring of treatment efficacy in patients undergoing MR-guided Focused Ultrasound (MRgFUS) treatment for refractory tremor.…Subclinical inflammation and Parkinson’s disease
Objective: To investigate subclinical inflammation in individuals with early drug-naive Parkinson’s disease (PD). Background: Neutrophil-to-lymphocyte ratio (NLR) is used as a marker of subclinical inflammation.…Development of quantitative tools for in-home clinical assessment of people with Parkinson’s disease
Objective: To develop telehealth digital data collection methods for evaluation of multi-modal function in people with Parkinson’s Disease (PwPD) and develop biomedical informatics tools for…Qualitative Interviews With Children/Adolescents With Dyskinetic Cerebral Palsy (DCP) and Their Caregivers
Objective: To capture input from children/adolescents with DCP and their caregivers on the content validity of the Movement Disorders–Childhood Rating Scale (MD-CRS). Background: DCP is…Caregiving people with Parkinson’s disease (PPD)
Objective: To show results form a study on caregiving PPD from a relational perspective. Background: Caregiving people with chronic neurological diseases like PPD can lead…
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