The development of an electronic motor symptoms diary for Parkinson’s disease using qualitative patient insights
Objective: To develop an electronic version of the Hauser diary, commonly used in clinical trials to assess motor fluctuations and dyskinesia in patients with Parkinson’s…A Novel Peer Mentoring Support System for Persons with Parkinson’s Disease
Objective: Research indicates that peer mentoring approaches can be effective in providing support as well as increasing the well-being of people with various disabilities or…WATCH-PD Qualitative Study: A Mental Model of Coping with Disease Progression
Objective: To qualitatively evaluate how individuals’ adjust to and cope with symptoms of Parkinson’s disease (PD). Background: The WATCH-PD qualitative study is evaluating meaningful symptoms…Benefits of Exercise on Mobility, Balance, and Cognition in Community-Dwelling Older Adults: An On-Land vs. In-Water Comparison Study
Objective: We conducted a three-arm trial (water exercise group × land exercise group × no exercise group) to assess the effects of a 4-month exercise…Noradrenaline treatment of apathy and impulsivity in participants with Progressive Supranuclear Palsy syndromes (NORAPS). A Phase II clinical trial – ISRCTN99462035.
Objective: The NORAPS Phase II clinical trial seeks to demonstrate safety, tolerability and efficacy of atomoxetine in Progressive Supranuclear Palsy (PSP). Background: PSP is a…Minimally Clinical Important Differences of Hemifacial Spasm Score-30 (HFS-30) and Hemifacial Spasm Score-7 (HFS-7) for Patients with Hemifacial spasm
Objective: We aimed to estimate the MCIDs of HFS-30 and HFS-7, and factors associated with the MCID along with baseline and change score of HFS-30…Experiences of a personalised intervention to support self-management in PwP – PD-Care: Live Well with Parkinson’s
Objective: 1) Evaluate acceptability and feasibility of the intervention2) Understand barriers and enablers to engagement and intervention improvement recommendations Background: We co-designed the ‘Live Well…Salford’s Community Based Movement Disorder Service: Providing integrated care for people in their own homes.
Objective: Our service aims to provide integrated care for older people living with movement disorders.We review our patients in the own home and coordinate their…Evaluation of Functional Impairment and Treatment Satisfaction in Patients With Essential Tremor: a Cross-Sectional Study of Physicians Using Real-World Data
Objective: To describe the impact of tremor on activities of daily living (ADL) and treatment satisfaction in patients with essential tremor (ET). Background: ET, a…Long-term evaluation of advanced Parkinson’s disease burden and clinical outcomes: results from the PROSPECT observational study
Objective: Evaluate long-term clinical outcomes and disease burden in people with advanced Parkinson's disease (PwP) with motor fluctuations not optimized by their current medications. Background:…
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